Pain Concern
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Now PIP form need doing the joys!!

Hi well I have finally reduced my Tramodol to four daily from six the first couple of weeks were awful but I did it!!

Now on morphine until I get back to pain clinic in a fortnight assessment first then fingers crossed. I am in limbo at the min but hopefully get on something that works and has ok side effects. Any advice welcome hope your am having your best days.😊

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Sorry I don't have any advice to give you but just wanted to wish you all the very best and hope that you will get pain relief that suits and helps you I empathise with you so much

Good luck at the pain clinic x

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Thank you it was a difficult decision to come of Tramodol but glad I made it . just trying to stay optimistic until my appointment hate having to go through it all again. Hope your having your best day x

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I do hope you get some relief I'm on Zapain they are codeine and paracetamol and they do help I was on a fairly low dose then I had a series of blood tests and my doctor rang me and said she was worried they weren't giving me enough relief and upped the dose to 30/500 mg I usually take 2 in the morning then see how I am during the day and usually have another 2 late afternoon depending on what I've done in the daytime I have never had any nasty side effects at all I have Tramodol if I need it but only take a couple every now and then when the pain gets too much I dont know if you ever watch GPs Behind Closed Doors ? There was a lady on there last night coming off Tramodol the doctor was lovely I don't know what your condition is but have you tried Tai Chi ? I found that helped me I've just bought a DVD to do half an hour a day I did go to a class but haven't been back since my hip replacement but it's very gentle and calming I have OA all over and I find that moving helps me I stiffen up sitting I also try to do pacing but I have to discipline myself I was told about it at a physio group That's a great idea to do an Open University course what will you do it on ? You sound a very positive upbeat person It's a pain literally isn't it but we have to keep smiling All the very very best 😊

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Thank u for your reply I am upbeat but it gets so hard to stay positive when my pain flares up. My pain is caused by scar tissue fusion after a ruptured ectopic surgery then a large cyst 6 moths later another surgery. Then 6 months after that my scar tissue fused my ovary to my bowel. Another surgery. I cannot have more surgery as it will cause more scar tissue. Tai Chi sounds good though I was thinking about trying more than meds. I will look into it can you remember what the DVD is called? Hope your having a good day x

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Oh my goodness you poor thing you have been through so much Yes it must be hard to feel positive when you have a flare up

I was in a lot of pain yesterday had to stand in a queue at the checkout and I felt so light-headed with it Had to take Tramodol when I got home and had 2 before bedtime and this morning felt so much better and only had a couple of Zapain all day

I'll text you the details of the dvd in a little while it's upstairs It's very gentle

I do hope you have had a good day x

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Aww thanks I will get a copy anything to help is worth a look. I struggle standing in queue and rely on morphine and Tramodol to get flares ups under control.

I was having a ok day until a ESA face to face assessment letter came I have had one every time I need to reapply. Seriously though I hate them may need Tai Chi before I go glad you have had a better day today x

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Won't be long I'm going upstairs in a mo to snuggle down to watch Gogglebox on plus 1 It always makes me smile I have a book I will tell you about too

I had to Google ESA as I didn't know what that was 😊 how daft am I

Oh yes I can understand that's not a nice thing to do although you have every right to it I was like that applying for my blue badge although it wasn't face to face it made me feel I was making it up ! I guess they must get so many horrid people who try and claim things they are not entitled to I hope they are kind when you go

Back in a mo xx

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Right back again !!

The dvd is called Tai Chi for Arthritis with Dr Paul Lam There are 12 lessons half an hour each session that you build up gradually I know it's for arthritis but I hope it will help your pain too but as it's relaxing it should help

The book is Mindfulness for Health a practical guide to relieving pain reducing stress and restoring well being It's by Vidyamala Burch and Danny Penman It comes with a cd I bought the book and dvd on Amazon

I don't know whereabouts you are but we have a thing called the Recovery College it's run by NHS and local council and has free courses all on well being I've done pain management and mindfulness they were brilliant It might be a nationwide thing

The mindfulness was amazing I felt wonderful after it stress and pain wise

I've also got a heat pad have you ? I find it very comforting when I'm in pain It's a Dreamland one I ordered it from Boots

Well night night wishing you a lovely weekend take lots of care of yourself xx

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Thank you I will get the book my psychologist talks about mindfulness a lot as I have trauma therapy weekly and suffer from depression so it may help both.I use disposal heat patches nightly is yours a permanent one? I will ask about the recovery college at the pain clinic you have given me a lot to work with😊 Hope we get a sunny weekend stalwarts cheers me seeing the sun. Have a great weekend thanks again x

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I suffer from anxiety attacks and the mindfulness helped me so much plus it made me feel really happy I'm so sorry that you suffer from depression I have had it in the past and it's horrible I'm certain it would help you There were people on the course who had depression it makes you see things differently little things become simple pleasures it's wonderful

Yes it's a permanent one like a little electric blanket ! It's lovely and 5 heat settings so comforting

Do you ever use the videos on YouTube ? There are some great ones for depression pain etc I love the Michael Sealey ones his voice is so calming Mindfulness too on there

Yes let's hope the sun shines it always makes me feel so much better 🌞🌞🌷🌸😎😊xx

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Unsure if you want help for PIP forms or pain clinic?

x

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Hi Banana5 pain clinic please although first appointment is assessment I am stuck on ideas of pain killers to try. Wondered if you had any ideas or advice hope your doing OK x

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Hi

I found morphine wonderful at first but it made me nauseous eventually and fortunately I could stop taking it. I now use other forms of painkiller like codeine or recently amylltryptaline at night.

Have you considered alternative therapy like acupuncture? It can Help sometimes.

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Thanks I have tried acupuncture it didn't help. I take amitripiline on a night highly recommend it. I have taken codiene but not in high doses may give that I go x

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The first thing you will already know and that it causes constipation. I am not sure of what doses your on, so that will effect possibly your ability to be focused on what you're doing. So be careful. If you are on them long term, then there are other side effects.

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Hi yes it does cause awful constipation I am on a low dose 5 mg x4 hourly. It seems to be helping I still take four Tramodol and will need to reduce my dose soon.

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Sorry 10mg every 4 hrs

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Hi I am down to 2 tramadol a night from 8 a day it was a nightmare getting there. I do like morphine but I am allergic to it. it makes me seriously itchy as for the pip forms why not contact citizens advise have a look on line for the way pip is scored Good luck.

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Hi well done for getting down to just 2 Tramodol o hot sweats cold clammy skin wake up in the night drenched in sweat. I am dreading dropping again. I HATE filling in forms just done my ESA and will tackle PIP tomorrow. I would love to get my pain to a bearable level maybe do something like a open university course from home? Anyways that's my wish hope your OK ?x

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Have you tried pain patches? Pip/esa form for me was straightforward although took ages to fill in. Got both mine awarded without fuss.. Send in as much medical evidence as you can. I only sent mri. As for open university course. I'm currently in process of starting a diploma through the british gas scheme. Thats if you live in the uk..

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Hi thank you for your reply I will ask about the patches. I have sent in medication list letter confirming I see a psychologist weekly for trauma therapy. I cannot fathom what else they need but have an appointment as returning to pain management so will send a copy of the letter. I thought they wrote directly to the health professionals themselves if they want more information.? I just get so stressed out and upset thanks again it he's talking to others who get it x

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They did write to my doctor... not sure about others... im sure you will be fine.

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