I've been experiencing back pain from 1998. Experience numbness, spasms, lack of co-ordination, so everywhere hurts including under my toe and finger nails. I've had to fight to get tests done because I was always told you have arthritis, it's wear n tear. Talk about frustration. I knew it wasn't that so at times I'd just try n bear the pain while trying different pain relief. It was was while attending physio and the therapist wasn't happy with what the specialist said so she wrote to him demanding another MRI because she thought I was too sensitive when being touched so I had another MRI first time I see the pain specialist he explains why I'm so sensitive, shows me what my spine looked like and asked if I had been in a car accident because my disc on on top of the coccyx had crumbled and he pressed there to show me and my legs collapsed n the pain oh my goodness.
I have so many problems because of this. I suffer with anxiety panic disorder and I've had a cancer tumour removed. I've just turned 50 and I thought because I've always been fit, I used to do volunteer work, I worked with children who found it hard to channel their anger, Down syndrome, speech impediments and I used to do African n Caribbean dance traveling around from schools, universities including Glastonbury ( amazing) all these while being a single parent of two beautiful caring children.
Now I watch because there's times I can't move, I hate nighttimes because the pains at it's worse. No matter if u rest walk around slower than a slug. I don't know what it's like without pain anymore. I have friends n family who say they understand but they just frustrate me more with their comments. I wish I could take this pain and let them have a taster of say an hour or even a day for them to really understand and shout up
Sometimes It's so unbearable I cry n cry more cuz I can't even thump my bed cuz it hurts too much (carpel tunnel)
I now try taking a day as it comes can't really plan I have to rely on others n that's another story lol. I just wanna have fun as I can't do very much. But I'm still breathing better than some, I can still talk, hear, n even though there's times I can't move or I have spasms half or all body I'm still able to see another morning and that's what I think of when I'm having a bad one