Hidden in reply to Hidden6 years ago

I considered it but one of my symptoms is a numb buttocks and radiating pain and I can't have anything touch it at all .

Hidden in reply to Hidden6 years ago

You have never actually tried it then.

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Hidden in reply to Hidden6 years ago

No I haven't based on that even the slightest touch hurts as does wearing tight clothes the sensations I get along with the pain it became a no go area even when the cat sits next to me and he foot touches me it makes me wince so kinda bypassed the massage option. Although did consider a test one just to see but again thought how can I have one when it hurts so much.

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Hidden in reply to Hidden6 years ago

Can you go talk with a person that does the massage and tell them about your worries, maybe they can explain how it works and if it would be beneficial to you.

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Hidden in reply to Hidden6 years ago

It's definitely worth trying . Right now everything is worth a try. Thanks

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Hidden in reply to Hidden6 years ago

I hope it works out for you.

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Hidden in reply to ITYFIALMCTT6 years ago

Yes I've been through pain management course and now with clinical psychologist.

Hidden in reply to Amkoffee6 years ago

My first GP was not helpful and I had to push to get the 2 referrals back in 2015 to hip and spinal orthopaedics . It seems that the 2 I saw for hips weren't overly interested as I have mild dysplasia one was the one who literally wrote butt massage on a to do list note to bring home along with 'back exercise. Google it.' The other had mild dysplasia and her atritude was go deal with it as she did. Even showed me her own xrays . I suffer alot of radiating pain also permanent numbness in the butt that i can't have anything touch it as it's horrible sensations and pain. I pushed to see spinal as besides the burning and aching stiffness etc etc I have raw severe pain in the lower spine. So I'm like ok I have dysplasia now what's wrong with the spine but the attitude was because I had dysplasia that must be my pain and I felt ignored . This appointment I found out I have a leg length difference . The stress of all these pathetic people brushing off what I said I gave up and just dealt with life with pain . Then 2016 Sept it was beyond copable so I moved doctors got a new referral to someone able to get it have hip and spine issues. He poked n prodded and pulled me about and said you could have bulge disc you could have osteoarthritis we can't fix you and imagining won't always find a reason for pain so learn to live with chronic pain . So mechanical pain was said. I did feel listened to and that he understood I suffer severe pain not just an ache. So I saw my gp who refered me to pain management after 2 months he agreed I was already doing everything I could and they suggested so refered me to psychologist to help me deal with the stresses of life like this and other people and how they are . Which so far is good and I've even helped her and she asked if I'd ever considered a job in psychology lol because generally I'm gd at coping and dealing but it drains you . I've always been very independent and good with power tools lol but when I'm sat having considering that I may need to ask my partner to help me get my jeans off for a bath ( not that he'd mind lol ) or help in and out of it I can't deal with. I've run out of ideas to help pain with out Meds I have a spa I have hundreds of pillows of alsorts softness I tried crutches walking stick even a mobility scooter to have a back up incase I really had to get out n couldn't but I can't sit for a few minutes on my butt I can't stand or walk hardly and spend most my time sitting on my dodgy hips that hurt and now causing more issues with pins needles n sharp pains which is fun driving with and necessary as I live in village no shop and middle know where 20 minute to nearest big town 10 to a super market when 5 min can be impossible at times.

Oh and pills I have diazipam. But will not go down the pill route I've seen what it's done to a friend I wanna fight n learn not use scaffolding to hide what's wrong

sorry that was epic but off my chest now 😀

Amkoffee in reply to Hidden6 years ago

Thats ok I'm glad you got it off your chest. It sounds to me like you really been through the ringer on this. Like you I have problems sitting too. I use a cushion similar to what you would use on a kitchen chair. I take it with me when I go out to dinner too and bring it in with me at the restaurant. And I'm good for about an hour and that's about it. Otherwise I typically lay down because I can't stand for long periods of time either I also can't walk. As for all of your doctors I think you're letting them walk all over you and I think you're going to have to get tough with him. As I said before you're going to have to advocate for yourself. You're going to have to demand treatment. What it sounds to me like you have is neuropathy which is a pinched nerve probably a pinched nerve from a disc and that nerve that is pinched is running down your leg causing the pain. The diazepam that you have will work as a muscle relaxer somewhat and I'm guessing that's why it was prescribed to you. Although I can think of better muscle relaxers. And diazepam is habit forming so be careful. There is a drug called Gabapentin that will help with the nerve pain it is not habit forming and it is typical drug used for nerve pain or neuropathy. I've never taken it myself because I don't suffer from neuropathy but I have heard some people complain about memory problems when taking it. But on the other side I have heard a lot of people say it works for them so you've gotta decide for yourself if you want to try it and if you decide to try it then you've got to ask your doctor for it. We might be better off talking by email rather than here. My email address is amkoffee@yahoo.com. and my name is Kathleen. Of course it's your choice. Good luck to you.

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Hidden in reply to Amkoffee6 years ago

Thanks Kathleen and know what your saying I will send an email so u have mine and it will alot better.

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Hidden in reply to jacqui67196 years ago

I know about the morphine patches and also remember how great morphine was after my c section 15yrs ago . I spoke to my new doctors in Jan about these and I'm and hugely against Meds and I know I will try my hardest to avoid I did want to at least know more and we agreed for now that they wasn't something for me.

I suffered from agoraphobia anxiety and panic attacks I was totally house bound for 4 yrs and spend 4 getting my life back all with out Meds or doctors and this is still my mind set. I tried everything from homeopathic remedies to my own version of cbt therapy even eating spinach lol I joined support groups and learnt everything I could about what I was suffering.

The bit that's hard with this is that l don't know exactly what I'm dealing with. So I'm shooting in the dark leaning and analysing my pains to try solve the amount I suffer.