Hi everybody. I am a 61 year old female going on 18 I broke my wrist - fortunately not my dominant hand - on 29th September 2016. Excrutiating pain and swelling was diagnosed as CRPS on 4th December, after previous consultant telling me my problem was due to lack of exercising - idiot is a minor form of the word that springs to mind!! Am on 300mg, 3 times a day of Gabapentin, and codeine as and when needed. As I currently work, I only use the codeine at night to sleep, but supplement with Ibuprofen. To be honest, the Gaba doesn't seem to make much difference to the pain so was wondering if anybody can advise what they have found to be the best pain relief. [I won't take Tramadol as it completely knocks me out and I cannot have that happen for the job that I do, which requires clear thought - although that is proving difficult with the ongoing pain.]
At the moment I am having to pay for weekly private physio as can't get regular NHS physio. Am also still awaiting an appointment at the Pain Clinic, not that I hold out much hope from them from what I have read!
Basically, I am trying very hard to remain positive and use my hand as much as I can. But, I have a rigid wrist, cannot reverse flex at all, can't bend my fingers properly and night time is when it all starts kicking off big time. Am using Glucosamine gel and Flexiseq to try and encourage movement but to no real avail. I also massage my hand and fingers as much as I can.
I know there are many of you who are far, far worse off than me, especially those of you who have this God awful condition in your foot/feet, and my heart goes out to you. However, what is most perturbing is the sheer lack of understanding about this condition and the fact there is no known cure. I have been told that I may never get better and in fact, that I may get worse. Already my arm is severely wasted and there is nothing I can do to strengthen it. I am just hoping that somebody here has found something that helps, that is not widely known out there? Or, that somebody can recommend any exercises that work for you that may work for me? I know we are all different and we all cope with things differently and equally, different things work for different people but, you know how it is, desperation kicks in and we become willing to try almost anything. I have a lovely private Physio but although she knows the principles of CRPS, she is not that experienced in dealing with it.
Also, has anybody noticed if diet [or alcohol] has any negative or positive effect on the condition?
I look forward to hearing from you. Take care and here's to a better year in 2017 for us all.