Connect with Pain Concern on social media - Pain Concern

Pain Concern

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Connect with Pain Concern on social media

14 Replies

Hey all,

Thanks for following us on HealthUnlocked. You can keep in touch with us by following Pain Concern on other social media too!

We're also on Facebook. Like our page: facebook.com/painconcern/

And Twitter: @painconcern

Follow us for updates on pain news and research, pain podcasts, our work to improve pain management and much more.

Thank you,

The Pain Concern team

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14 Replies
Hermes123 profile image
Hermes123

Hermes123. Not all of us follow social media, yes I know off an age that puts me in the minority, but it is like the old saying? hanging ones dirty laundry out in public, as ex Military At one time on a social media site sticking up for our guys, had received so much hate mail from a certain sector abroad, said to myself this is not the behaviour of normal normal human beings and wash my hands of the whole thing of social media.

in reply toHermes123

Sorry to hear you had a negative experience of social media, Hermes123. Hope you've found people to be more reasonable on here.

We're aware not everyone is on social media or even online, so we try to cover all the bases. If you haven't already, check out our Airing Pain podcasts (a few of the recent ones cover pain among military veterans): painconcern.org.uk/veterans/

We also do free paper leaflets and a magazine which you can try a free trial of: painconcern.org.uk/resource...

Best wishes,

Pain Concern mods

Hermes123 profile image
Hermes123 in reply to

I have no problem with this site what so ever! As I know in the main it is fellow like minded pain suffers online, so far a very good experience, I hope it last, as it helps us to keep our heads above water. Hermes123.

in reply toHermes123

Hermes123 \i have had chronic back pain I am told is neuropathic and the tablets I was prescribed were actually opiates. I went through hell to get off them and now self medicate with supplements to take the inflammation down and essential oils. I am pain free with no worries as no internal badness going into my body. Everything I learned was from You Tube. Try it. You have nothing to loose and everything to gain. Everything I take is organic. Learn how to make your own pain free topical creams as well.

cuddles123 profile image
cuddles123 in reply to

I am not looking for drugs-just pain relief. I had a spinal fusion L5-S1 in August 2014 which resulted in failed back syndrome and chronic back pain. My pain mgmt doctor diagnosed me with meralgia parestetica, which is compression of the femoral nerve.I just went to a spine doctor from another hospital and he told me that was all wrong,and the medications I was taking were also all wrong. I am taking 3 x 300 gabapentin per day,

in reply tocuddles123

Oh boy, i wish i would have saw your post b4, i too hsd a L4S1 fusion, 2 of them, left w nerve damage, wentbthru the gaba and hell comjng off, too many side effects on. Tried everything. Finally did a pain pump trial last week, and i was 100 % pain free!!! Its the only way to go, been thru it all for 7 yrs in bed, im given a new start!!!

Brunobilbo profile image
Brunobilbo in reply to

Hello hidden

Good morning. Just joined this forum. On advice of hospital surgeon. Been reading your post which was interesting. I'm using gabapentin and paracetamol

The gabapentin makes me so sleepy. I have crps bad in my wrist and right foot. So painful. The pain pump you use sounds interesting. What's it called are they available. Thanks look forward to your reply

Hermes123 profile image
Hermes123

prookyskin71. I would not know where to begin with all the self remedies and other methods of treatments I have tried out over the years I was working, I spent thousands of pounds from my wages over the years of my working and have only come up with two life savers that help me with most of my pain. one is medical style infrared lamp I would not be with out, the other a muscle rub called Greek Mud, I been through the weird and wonderful with all they claims of healing power. 99. per cent rubbish. Hermes123.

Linnea1 profile image
Linnea1 in reply toHermes123

Hermes, Would you kindly let me know the brand name of the Greek mud you use, and where you bought it?

Hermes123 profile image
Hermes123 in reply toLinnea1

Hermes123

Linnea1. Hello there I am pleased at least you are looking for help ? Joint mud.com : it will give you all the details on their web site, I always bulk purchase when I re-order ! But I would suggest for you? just order one tube and see how you get on with it first, it might seam pricey but a little go's a long way. Good luck. Hermes.

Linnea1 profile image
Linnea1 in reply toHermes123

Thank you, Hermes123!

Hello thank you we will be following you now :)

marcia200 profile image
marcia200

I live by in constant pain. I have a appointment at pain clinic they give me tramadol that doesnt help I dont know what I'm going to do.

FRreedman profile image
FRreedman

With doctor's knowledge, reduce slowly over a long period.

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