Woke this morning, my leg is aching and the pain in my abdomen is such that I really nauseous. Can't face food. Today is going to be horrendous, as I will have show how bad my mobility is. My daughters and son know how little I can do and how much support I need. I used to be "supermum" trying to do everything but over the last few years my health has gone south. Independence to feeling like a burdon. I am grateful for my supportive children.
Blue badge assessment today, and at some point hopefully in the near future an F2F for PIP.
Hugs to all
Liz
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Liz62
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There really isn't 2 sides to OT evaluations. I'm assuming she's coming in the capacity of evaluating activities of daily living in order to provide devices or methods of doing things that will cause less pain. Things referring to eating, dressing, hygiene, ambulation, bathing, being a Mom, household chores, etc.
That's great news. Was it a home visit from the OT? We're there any other recommendations made? Stair lifts, bath lift, door widening, downstairs extension/loo, help with cleaning and childcare? All these things are provided by the local council and wil vary depending on where you live from Camden giving away 5 bed houses next to celebrities for £150 a week to Southwark "we only provide palliative" or Lewisham "we don't do OT assessments even though it's a legal requirement"
That's great news Liz, nothing more than you deserve, you will find it a godsend, read the book carefully that comes with it as some rules have changed, one of the main things that catch people out is the yellow lines on the kerb edge, even disabled cannot park where they are.
Hopefully your life will be so much enjoyable not being in pain trying to get to places that previously you had to park a long way from.
Hopefully it's an omen for your PIP ftf good luck with that as well, don't forget to tell them you are now a blue badge holder.
With regards to ftf, the application for PIP was submitted a month ago and I have heard nothing. Wondering if I should phone, and update about badge and enquire about application
Hi Liz I don't think it will hurt to let them know about blue badge, as they seem to be looking at people having aids such as sticks crutches etc, the Blue Badge in my opinion is another aid, if you let them know you may not even need the ftf hopefully.
Well done you. You are coming through the denial phase. Something that happens to us all - whatever the illness, disability or condition. What you used to do in the past is just that...in the past. If you try and carry on like that you will make yourself more ill with more pain.
Accepting this is you now is a huge achievement. Pacing yourself so you don't trry and do too much. Everything at a very much more gentle pace.
Thanks for that info Pat, I had been told the opposite, it's a good job there is someone on here that has the correct info, I feel that it's a game of Chinese whispers, someone passes info on to another person but in the end it turns in to the opposite of the facts.
I'm so sorry Liz for giving you wrong info, I will think twice in future passing on anything I hear unless I've seen it in black and white.
Thanks again Pat for info would appreciate any other info you've got on pip as I expect to get my DLA changed over anytime soon, I only get the lower care rate right now but every little helps when you have to rely on benefits, I have been to scared to reapply to DLA when my condition worsened, which was before PIP came out, in case I lost the little bit I was getting.
Always happy to help where I can Cheryl. Been campaigning against welfare cuts for too long. Don't want to alarm anyone but the furure for us all is bad.
One thing...DLA lower rate care is being deleted so...hopefully you will be able to go for a standard or even enhanced rate of PIP. Sit tight - your turn will come round soon enough. There are thousands of us who have been on life time or indefinite awards.
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How is everyone doing today? 
Atos assessment done 
Assessment done
Not managing my pain today
Health assessment completed
