My son is 14 years old and on March 10, 2014 he developed right shoulder pain and from that point it has spread to the other shoulder, in the neck and now in the lower back. Since the pain has developed we have went to his pediatrician who has sent him to an orthopedist, a neurologist, an oral surgeon to rule out TMJ and a therapist to see if this was psyhosomatic.....and it's not. He was hospitlized for a week at one of the best Children's Hospital in the country (Texas Children's) and new group of pediatricians, orthopedists and neurololgists examined him and still have no diagnosis but sent him home with about 10 medications, none of which help other than Tylenol 3 and NSAIDS which only take the edge off the pain. But one thing that might be helpful to someone who may have experienced this, is when he first came down with this pain and he went to the ER, he ran 102 fever. After running labs/tests the ER doctor said in his 30 years of being an ER doctor has never came across this before, and said it could possibly be viral or bacterial and gave us two different antibiotics and said they may help....they did not. When he was at Texas Children's one of the Neurologist, made a statement and said it could have been a virus that has compromised the immune system and in return the immune system has attacked the nervous system making it go "haywire". And he mentioned the only way to deal with this is a 3-day IV, Immune suppressant drug/therapy that he receives in the hospital, but it was a quick "no" from the head neurologist, saying that couldn't be it, but he also offered no other diagnosis. We know that is nerve pain because he can't even take a bath and definately not a shower without being in severe pain because the water only touches it, he is also very sensitive to a very light human touch and that's why the Tylenol 3 isn't very effective because it doesn't work well with nerve pain from what we have been told. I'm sorry this is so long, but it's been a long journey. If anyone has experienced anything like this could you please let me know, we could use any advice we get. Have blessed day!!
Last edited by Tina1963
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