Scan results all good. : Been for scan results... - My Ovacome

My Ovacome

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Scan results all good.

kazrazmataz profile image
33 Replies

Been for scan results Today. Saw my surgeon lady, she walked in, asked me how I was and I nearly burst out crying and told her I was feeling very anxious. She just said well no need as scan was NED (No evidence of disease), could not quite believe it as was Stage 4. Hope this gives hope to others still going through First line treatment. Am aware we are not all on same page but when I last spoke to my Specialist Nurse she said OC is now looked on as a chronic long term condition and that there is a lot they can do to treat it. Plus the new drugs that are being licensed from this year (my surgeon lady said this last time I saw her post chemo 6). Popped in local small Tesco on way home, young chap serving me asked me if I had had a good day, told him I'd had a great day. Love and hugs to everyone x

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kazrazmataz
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33 Replies
Jo-Bo profile image
Jo-Bo

Fantastic. I am so pleased for you. Happy days.

kazrazmataz profile image
kazrazmataz in reply toJo-Bo

Thanks Jo x

AndreaW profile image
AndreaW

Thank you so much for posting your good news. I too am stage 4 and I'm always looking for some positive news and information about new treatments. This is fantastic news for us all! Andrea xx

Sounds like you have had a brilliant day. Hear, hear.

Love,

Judith

x

Kimjane profile image
Kimjane

That's great news I newly diagnosed 4 oc spread to liver and stomach lymph nodes and on first line chemo but this does give me hope. And I am so happy for you. Lots of love Kim x

Jackie0 profile image
Jackie0

Brilliant!!! So pleased to hear your news.

Hope and pray I may have same result at the month end. Who knows its in the Lap of the gods!!

Have a glass of bubbly and enjoy yourself!!!!!!

Much love JO xxxxx

kazrazmataz profile image
kazrazmataz in reply toJackie0

Good luck, When do you go?

Jackie0 profile image
Jackie0 in reply tokazrazmataz

28th Jan,thanks for asking!!.bit like Russian roulette isn't it? Going for results.My oncologist has a face totally devoid of any emotion,so he could tell you that you have just won a million on the lottery or you have a month to live ,with the same monotone and facial expression!!

Still hey ho keep smiling eh??

Much love JO

kazrazmataz profile image
kazrazmataz in reply toJackie0

Maybe your ONC puts on a front. I think they must care as why else would they choose medicine as a career, would get nothing out of it. I have not always seen the same consultant, however the consultant I have seen the most is my surgeon, she came to see me the day I was diagnosed as was in hospital with ascites. I do feel like she has been on my journey with me and have struck up a rapport with her. My husband always cracks at least one joke about my no 1 priority during treatment being to go to Greece, she was not in favour and kept saying Cornwall was very nice. She even mentioned it in her dictated letter to my GP saying she did not think she had managed to convince me (not to go to Greece)!

So when I got to the hospital I was disappointed as her name was not on the board as to which consultants were in clinic. Was surprised when she walked in the consulting room. My husband said she went to hug me when we got up to leave but I backed off and shook her hand instead. I could tell she was really happy to be giving me good news though. Lets face it she had operated on me for 5 hours, my friend said you could say she knows you inside out! They had looked at my scan at MDT that morning so I guess she had said she wanted to do my appointment. She just said my scan was NED (she knows I know the jargon) but then spelt it out for the benefit of letting it sink in.

Take care and good luck with your scan, I will be thinking of you xxx

Elaine13 profile image
Elaine13

So pleased to hear your fantastic news. Could not be better.

Maybe time for a celebratory swim..... It is a bit chilly though :-)

Love Elaine xx

trix70 profile image
trix70

Such good news for you and positive talk from your Onc. That's what we want to hear. Good luck to you. Trix

kazrazmataz profile image
kazrazmataz in reply totrix70

Thanks Trix x

hmmartin profile image
hmmartin

Great news! Thank you for sharing this. Love life! Maureen x

Btte profile image
Btte

Great news, continue to enjoy lots and lots of good days.Love and a happy new year to you all. Bridie x

kazrazmataz profile image
kazrazmataz in reply toBtte

Happy new year to you toox

Brilliant news, that lad must have seen you smiling so yes you can still attract the guys haha. Are you on Avastin I cant remember but it does work great for some. I went back for mine yesterday had a break of four weeks due to Xmas hols but I obviously didnt realise how good I was feeling until I got it and it hit me for six. Feeling better today tg. well hope you are treating yourself today or over the weekend, wish you well and so happy for you

kazrazmataz profile image
kazrazmataz in reply to

Not on Avastin as don't meet the criteria must have had paclitaxol with carbo x6 but had allergy x

kazrazmataz profile image
kazrazmataz in reply to

Ps hope you are feeling better x

ninawithOC profile image
ninawithOC

Oh that is bloody brilliant! So happy for you! xo

kazrazmataz profile image
kazrazmataz in reply toninawithOC

You too x

Izzystep profile image
Izzystep

So great to hear such good news. Long may you remain NED. LOVE Irene xxx

kazrazmataz profile image
kazrazmataz in reply toIzzystep

Thanks Irene x

thesilent1 profile image
thesilent1

Brilliant news. Well done. Ann xo

kazrazmataz profile image
kazrazmataz in reply tothesilent1

Thanks, hope you are ok x

Lily-Anne profile image
Lily-Anne

Wow you must be so happy, 2015 is clearly your year

LA

kazrazmataz profile image
kazrazmataz in reply toLily-Anne

Thanks Lily-Anne x

Samjane profile image
Samjane

WOOPEE!! Well done you, what fantastic news. That has made my day, how encouraging that is for us all. Especially been stAge 4. There's a way to go yet for this disease to be put to rest, but there is a lot more paths to try nowadays, and new drugs are sounding promising.

Love

SAM xx

AnnieMae profile image
AnnieMae

Wonderful news and so inspiring for us all.

Love

Annette xxx

baxbird profile image
baxbird

Bloody amazing news!

Sooooooooooooo pleased for you

Dawn xx

kazrazmataz profile image
kazrazmataz in reply tobaxbird

Thanks Dawn, still feel a bit down, difficulty is telling other people as they scare me with their positivity. Feel a bit better Today. CNS was saying if it comes back lots they can do and they are managing it more like a long term condition. My take on that is the newer targeted therapies will be more widely available soon. They have scanned me from the neck down so they are looking at my lungs as well as had pleural effusion. Big cyber hug to you xxx

baxbird profile image
baxbird in reply tokazrazmataz

Feeling the strength of your cyber hug here! Going to pinch some of your good news and hope it rubs off on me ( being selfish there, I do mean others too!) I'm dreaming of when I hear the phrase NED

If you are anything like me it's going to take a while until you ' believe' but you'll get there

Dawn xx

kazrazmataz profile image
kazrazmataz

So happy you can feel my hug, shame I can't pour you a glass of wine (or three) to share with me and sit and have a nice chat. My neighbour said I was the life and soul of her party a couple of weeks ago, oh dear hope I did not show myself up then again who cares at least I could hopefully make you laugh. Hope you get NED Asap in fact hope everyone gets NED. if I had the power, I would wish for that and world peace. My husband says I am an angel, mind you he also says I am a lot of things not all as complimentary, he is not one for bulls****g me. I laugh at him cus I think he actually believes it, he is not a particularly spiritual person xxx

Emalou71 profile image
Emalou71

Wonderful news so great to hear this, gives me hope too xxxxx

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