Hi,I ve been reading the boards for a while and this is my first post.
I just feel so gutted at the moment.......diagnosed and had surgery Feb 11,carboplatin treatment which I responded well to only to have a recurrence 5 months later in Jan this year.
I had ascites which I went to hospital for and was drained before starting chemo again.Had 5x treosulfan/gemcitabine but plateaued so did not have no:6(ca125 still v high)........ascites build up again after 4 weeks so back to hospital for drain(which was a nightmare!) to start on 12 x weekly taxol.This chemo eventually dealt with the ascites so I did not need the pleurx drain that they thought i would and was doing great,CA125 were coming down nicely(mine have been vv high ie in the 1000's!)
I had my last treatment last week and was looking forward to having some time off as I feel that I have been on chemo forever but last friday I felt a bit of tummy discomfort and just sort of knew what it was.I have been hoping it was just bowel inflammation and it would go away(I did have diarroeah at the weekend) but it isn't going down.
I am due a CT scan on thursday and appt with onc next week so I will have to see what comes of this.I just feel so disappointed as I hoped for a little bit of remission.I am not sure that I can deal with any more chemo......psychologically that is,physically I seem to cope quite well,apart from having crap veins,it's the facing being punctured all the time that really gets to me.
What if I cannot have any more chemo?
Anyone have a pleurx drain fitted?(I feel they may suggest this)
Sorry for the long post
Many thanks for reading xxx