Its back!!: Hi everyone I've just got the... - My Ovacome

My Ovacome

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Its back!!

DeefromLeeds profile image
6 Replies

Hi everyone

I've just got the results of my scan... The cancers back, the good news is, its only 2cm in size. My oncologist said because its only small and I'm feeling fine, he said he's going to put me on Tamoxifen... The aim is to keep the tumors at the same size...Has anyone else been given Tamoxifen for Ovarian Ca?

Love

Dee xx

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DeefromLeeds profile image
DeefromLeeds
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6 Replies
wendydee profile image
wendydee

I have no idea about this, but you may find something on the past thread on here if you type tamoxifen into the search box at the top of the page

All the best,

Love Wendy xx

ladygooner-uk profile image
ladygooner-uk

Hi Dee

so sorry to hear its back, its interesting that they have given you tamoxifen, I have heard its sometimes used in usa, but havent come across it in the uk, apparently it can help with blocking oestragen, but I checked with my onc about taking my oestragen only hrt, and she said there was no reason why I couldnt take it- dont understand that but I suppose I dont have to!

good luck and take care

sue

Ladygooner, I think it's because some tumours are oestragen sensitive and some are not. Presumably yours is not and Dee's is. I think oestragen sensitivity is tested when your histology is done after surgery.

MargaretJ profile image
MargaretJ

Hi Dee

Sorry to hear it is back. I have not heard of Tamoxifen for OC. I see you are from Leeds I am from York so we may see some of the same oncologists. I have seen David Jackson and Tim Perren so far and, sometimes, members of their teams. No mention has been made of tamoxifen so far. Do keep us updated as I was told Avastin was only available for the newly diagnosed.

All the best

Margaret.

Flower profile image
Flower

Hi! Dee

I'm in the same boat as you. Cancer back for 3rd time, surgery too dangerous & no chemo due to low platelets & white cell count. Mine is also 2cms but say there is a lot of oestrogen in my body & it is feeding the cancer cells so they have put me on a drug which is a hormonal inhibitor & should help stop the cells from growing. Consultant was talking about Tamoxafen but they decided on Letrozole instead as this is a later drug than Tamoxafen and seems to have had good results. I'm on it for 2 months then another scan. If tumour hasn't grown any more they will keep me on it indefinitely until it stops working & then do Radium treatment. Both of these drugs are normally used for Breast Cancer. When I googled Letrozole I found a news article about trials on Tamoxafen & Letrozole with 2 groups of women & the results were good, with both but Letrozole came out on top. I just started my drug last Thursday & so far have had no side effects. Like you I feel well & tumour marker is only sitting at 9.

Please let me know how you get on.

Love & Light with hugs and xxxx's

Iris

(Flower)

Flyhigh profile image
Flyhigh

Hi Dee,

My mum was put on tamoxifen by her onc about 6 weeks ago. I don't think it's used that much for oc but because my mums ca125 levels had risen so quickly they thought they would try it in the hope that it might slow the progression. Unfortunately it doesn't look like it has worked for my mum but that doesn't mean it won't work with you. She also had no side effects really except for being a bit more tired than usual in the afternoons. Hope this helps, all the best x

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