Not posted for a while, had a break from the site and just answered a few questions when I thought I could help. However got confirmation from a scan that it is back. Had 13 months without treatment and being really healthy , happy and well. They did warn me it probably would come back, even though I didn't believe them! I think I deal with it best by being in denial and burying my head in the sand, its my coping strategy and it actually works for me.
Symptoms were rising CA125, bloated abdomen and oddly having much thinner, finer dry hair and nails, anyone else had this?
Onc suggests next chemo (3rd line) should be the same combo as last time which was carbo/caelex as it worked really well for me. Interestingly he commented that in his experience caelex works particularly well for women like me who have the BRCA 1 gene mutation.
He also mentioned I would be an ideal candidate for Olaparib, the parp inhibitor, if it had been approved for use in the UK, however he did mention a trial or a compassionate application to the NHS drugs fund. I will have to find out more about these later.
On the plus side I am in a much better position health wise this time than I was last time I started chemo (following 2 major surgeries in 2 months) and the side effects last time were not too bad.
I intend to stay around for a very long time yet and if that means more treatment then bring it on. But its still not fair!
Love and best wishes to you all