Hi Everyone, I'm new to this website and to ovarian cancer after being diagnosed in February this year. I have had a total hysterectomy and my second ovary removed (the first, the cancerous one, was removed already fairly soon after that. I am now on a chemo regime of Carbo/Taxol and had my second treatment today, apparently I will have 4 more. My CT was clear of residual disease and my CA125 was 22 today, after a very small elevation last time of 66, which my consultant says *could* have been because of microscopic disease (the peroteneal washings had "unfit cells" at the time of my hysterectomy) or could have been because of the hysterectomy, which is why they are recommending chemo.
One thing I do not understand is how ovarian cancer can come back if you have no ovaries or female organs anymore. I understand that you can get tumours recur on your liver or colon or perotoneal cavity and sometimes your kidney or lungs - but why is it that doctors say it cannot be treated very well/prognosis is so poor when people who get these tumours (without getting ovarian cancer first) can survive them?
I've asked the consultant several times but my brain seems unable to process this information. He says completion surgery and chemo places me in the best place for this NOT to happen but nothing is certain which I understand and am grateful for, but I guess I just need to understand why/how recurrence of ovarian cancer could happen when you don't have ovaries anymore and why the prognosis is so poor if it does.
If anyone can help me understand, I'd really appreciate it.
Many thanks for your great site and for everyone contributing to it; it's amazingly helpful. Best wishes, Ariel