Anyone also switching from Caelyx / carbo to taxol/carbo after 3 treatments ?

[Beatyourself]

After my problems with bowels that persist but are more under control now with new diet & medicine, we concluded that Caelyx/Carbo doesn’t work for me. The marker keeps on going up and down and after sinking from 277 to 197 it was again back to 270 last week. My doctor said my options are weekly taxol / carbo as it should be easier to give smaller dosis. Other option is do nothing. And he will support me in best way…

He didn’t do the new scan (last is from September) just assumes it is disease on my bowel surface causing this disorder and bloating. I actually believe is from chemo ruining my bowels from all the throwing up. Either way Caelyx is apparently not for me

Anyone experience with weekly taxol ?

thank you dear ladies 🙏🍀

[Mushymob]

Hi beat yourself, glad you have got your bowels under control now. Sorry I can't help with your question. Just thought I'd let you know that I'm still in hospital trying to get my bowels sorted, I've been in here for a 6 day's now with a drain in my stomach. Feeling comfortable but frustrated that my bowels aren't cooperating 😡. Hope you get your questions answered soon and I hope I get sorted soon. These things are sent to try us! Take care ♥️ 😘.

[Beatyourself in reply to Mushymob]

Hello dear , I hope you are meanwhile out from hospital ? Are you also having air in your bowels?

I am taking magnesium hydroxide tablets which apparently help movement but my belly is still very bloated and can only eat small portion of food, I also still throw up acid. I lost 11kg already so not sure what taxol will do to me. I hope we can get through this quick🙏

[Mariej2021]

Hi Beatyourself I haven't had weekly Taxol yet I have just had my first Carbo Caelyx But I have chatted to ladies having it on chemo day They seemed to be managing ok I think there will be people with experience who can give you a first hand account Hope it goes well

[Beatyourself in reply to Mariej2021]

Thank you dear, let’s hope it will also work for me 🙏

Good luck with your treatment ❤️🙏🍀

[BadgerBright]

Hi Beatyourself Really sorry to hear you are having so much trouble with your bowels. I am currently on weekly taxol after having had carbo/taxol, carbo/caelxy the maintenance drug rucaparib and carbo on its own. I have been on weekly taxol since July this year and I am doing okay with it. I just have some copable with neuropathy symptoms in my legs which have subsided by Mon evening. I do three weeks on and then have a week off. During my week off we plan breaks and visits to friends and family which has worked out really well. At my last scan my oncologist said all my nodes had shrunk and the one in my lungs were stable. My CA125 has come down from 143 to 80. Next scan in mid Nov so I have my fingers crossed. Do hope this is helpful with any decisions you have to make. This disease is certainly a challenge. Look after yourself. BB.

[Beatyourself in reply to BadgerBright]

I see I didn’t reply to you, sorry about that , my days were quite miserable. Thank you for sharing your experience. I have now finished my 3rd dosis of weekly taxol and is quite manageable indeed, even my hair is staying on thanks to cold cap. But my limitation is still bloated bowels so not much energy for fun stuff yet 😔

I hope your November scan will show NED! Don’t give up hopes 🙏🍀🕯️

[Mushymob]

Hi beat yourself, I'm still in hospital, 2 weeks now. Not much bowel movement. Currently only having ensure drinks. Still have tube in my stomach draining during night, unplugged during day. Still taking lots of laxitives but not much joy. Waiting to see gastric team next week so might know more then. Fingers crossed 🤞 xx.

[Beatyourself]

I am so sorry to hear you are still in such trouble and they didn’t manage to help you so far. I can fully understand that you are not feeling happy. This is such an unfair disease I pray for you that it gets better 🙏🙏🙏🍀❤️😘🤞🤞🤞

[Kazzh]

Caelyx isn't working for me either 😕. My 1st recurrence but my CA keeps rising. I'm bring considered for Taxol only as the next option, so please do let me know how you go on this 🙏 really Hope you get some good news soon, you're having a really rotten time by the sounds of it xx