What's next?: Hi all you wonderful women/lovely... - My Ovacome

My Ovacome

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What's next?

Cher96 profile image
5 Replies

Hi all you wonderful women/lovely ladies. Have any of you ever had a chemo called Topotican (sp?) or Gemzar? The Avastin and cytoxan doesn't seem to be working. I go for another cat scan next week to see what's going on. My CA 125 keeps rising and I'm starting to feel bloated and achy. I don't know what's next. It's always a wait and see.

Cher 96 (joan)

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Cher96
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Lyndy profile image
Lyndy

Hi Joan I have heard of the ones you mention but haven’t had them. You are so right, we are always waiting for the next thing and the next. I hope things are resolved for you as soon as possible. Best of luck with it xx

Cher96 profile image
Cher96 in reply to Lyndy

Thanks Lyndy. We’ll see what the next cat scan shows.

Caleda4 profile image
Caleda4

Hi Joan I had carbo/gemsar in 2020,finished mid October 2020. This worked for me. In Dec. 2020 I started on Rubraca which I am still taking,but my CA125 today was 160, but it has been as high whilst on this parp at 236. I feel fine so not sure what is going on really. I am due to see the Oncologist on 3 March so it will be another scan I presume.

I wish you luck Joan,take care.x

delia2 profile image
delia2

Hi Joan. I haven’t had either but gemzar /gemcitabine seems to be used more often for the first or second recurrence but usually with carboplatin. I know both showed up as possibilities with my genomic testing.

Cher96 profile image
Cher96

Any news from your March 3 visit?

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