I am no expert but sometimes when treatment starts, the figures go up to come down if that makes any sense. It has happened me on a slighter scale and then they came slowly down. The bloods they do on the second cycle really only reflects what the first treatment does. This is how it was explained to me. I am sorry that you are down at the moment, but hopefully after the next treatment things will start improving or the onc may have a plan b.
I was on Caelyx and he didn't tell me my ca125 untill after the third then a scan , there was a marked improvement , went the six stable , still bloated but stable , it's me who hot the drain s don't worry , Iike I did , slow worker xx annie
Thanks Annie. That's really cheered me up. I do hope it has some effect because it's a very harsh chemo for me.depression is the worse thing. Up and down moods.
Good luck and thanks again for the uplifting reply. Irene xx
Hello Annie. My Mum has had her fourth Caelyx and I thought her tum looked a bit bloated last time I saw her. Is this one of the side effects do you know? She hasn't been offered a scan and her CA125 has been going down slowly. Thanks. Jane x
I'm no kidden I thought I was finished , he was surprised why Annie , I look nine months pregnant should Clemo not take some down , not always , so if he's no worried don't u , don't be depressed life's too short u could drop dead with a heart attack lol xx
How do you know it's not working without a scan? Everyone tells me CA125 is irrelevant. It could be high because of the treatment and not that it isn't working. I know it's difficult not to worry but do try until treatment concludes
In my mam's case, ca 125 is never hugely focused on, but she had caelyx alone as second line treatment and we were told that caelyx might make things seem worse before they got better, that an improvement wouldnt be expected early on as that's the way it works. Can't remember anything else but that's the jist of it, hopefully that reassure you a bit.
I am sorry you have this worry. I so hope that after the third dose you will see an improvement. I am following you closely as I have just started this regime.
I have found it hard and only just feel back to normal after 10 days. Normally I feel better after 7.
So lots of good answers here, but Caelyx didnt work for me, CA125 very high (10,000plus) and Scan not great after 3 rounds looked a bit bleak at christmas to say the least. Went on Weekly piclitaxil and that did the trick for the past 6 months, just about to change again, but happy to have such a good response while it lasted! Hope the next one is even better!
For Christina caelyx 'kicked in, after 3rd lot, unfortunately our Onc didn't tell us the CA125 result for this........so it was stopped purely on the basis of CA125 taken the day BEFORE 3rd lot.
As others have alluded to it does tend to kick in after 3 or so infusions.....hang in there and hopefully it will for you as well.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
After caelyx & carboplatin
wonder what's next 
Not the news I wanted or was expecting 
Good news on Carboplatin and Caelyx
