Hey everyone,
I'm a new member in this forum and hope to get some answers to my questions or at least experiences from other members to help me cope with my symptoms.. I am 26 years old.
I've waken up 3 months ago with pelvic pain on two sides of my (left and right) pelvis and pressure in my pelvic area (Thought it was my ovaries causing me pain). This feeling lasted for 4 days and got worse, I thought that something was going to jump out of my pelvis and I needed more time to pass urine and a weak stream. Went to my gyn who didnt find anything suspicious in my ultra sound, nor in my urine. Went to my GP who also didnt find anything im my urine. Next day went to another GP, an Urologist, another Gyn. GP and Urologist said that it was an UTI. Gyn didnt find anything and said Urine was clear (on the same day!). I took anitbiotics and my symptoms vanished for 2 weeks completely. Since then until today I have the same symptoms every single day. The pain and pressure and discomfort in my pelvic area are driving me nuts. I had 2 MRIs of my pelvic area with no worrying results, 4 Urine cultures all negative and other tests with my urine (chlamydia, ureaplasms, mykoplasm, urine sediment, urine cytology), several transvaginal ultrasounds with no worrying results and tests for bacterial infections of my vagina and uterus all negative, blood tests all negativ including Ca125 which was 5. I begged for a Cystoscopy and finally my urologist did it. Also had an urodynamic study on that day prior to the cystoscopy. He found out that I had high pressures in my bladder while storage of urine. Also my bladder was trabeculated but didnt show signs of infection (according to him). The trabeculation was not significant in MRI and ultra-Sound which is why I am confused. I also am confused that I have these symptoms every single day.. I cant cope with them anymore. He told me that I had to see a Neurologist to rule out that I had Multiple sclerosis. I had MRIs of my spine and head all negative for anything worrying.
Tomorrow I will have an appointment in a specialized clinic (Neuro-Urology) which will perform Video-Urodynamics.
I'm really confused and worried as to why my symptoms are so steady. Why did they resolve after taking antibiotics but antibiotics dont help me anymore? People with neurogenic bladder or dysfunctional voiding dont really talk about pain and pressure in the pelvis to be a constant symptom and problem. I also dont think that I have IC as he didn't find any signs for infection on my bladder wall... I am worried that I am missing something and that the pain and pressure problems arent originated from my bladder, but other parts of my pelvis? Also I cant find anyone with the same problems (constant pelvic pain and pressure without someone finding anything).
I would love to here your thoughts on this!