Unsure what next to do : Hi all , the cyst I had... - My Ovacome

My Ovacome

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Unsure what next to do

Cathhunt profile image
12 Replies

Hi all , the cyst I had previously has gone , I now have a nearly 4cm ? Haemorrhagic cyst or endometrioma. My symptoms are the same - low back pain , frequent pressure to urinate , already difficulty with constipation so use an anal rectal washout system , bloating feeling , nausea and low pelvic pain which I’m taking Paracetamol for with no effect . Already on a NSAID .

My Consultant thinks I’m worrying about nothing and just said take painkillers- I feel a nuisance when trying to talk to him . I will be doing a private online postal ca125 to check for myself . Am I worrying about nothing .

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Cathhunt
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12 Replies
Saintgermain profile image
Saintgermain

Hi Cathhunt,

Did your consultant order a transvaginal internal ultrasound? No your not worrying about nothing I'm not trying to scare you but they symptoms you have need to be addressed I would push ahead. I am an OC Survivor mine stemmed from silent Endometriosis only symptoms were constipation and frequent urge to urinate. Also endometriosis can make your CA125 spike. Push ahead. Let me know how your doing.

Cathhunt profile image
Cathhunt in reply toSaintgermain

Hi yes he did , the sonographer recommended 6 week repeat to check the ovary but he says 3 months - seems too long to me , I’m also incredibly tired- nothing has changed to routine but tired from late afternoon, bit worried as I have 2 sons who need care so can’t afford for anything to be dismissed if you know what I mean , thank you

Saintgermain profile image
Saintgermain in reply toCathhunt

Hi Cathhunt,I agree with Lyndy be referred to a Gyno specialist I”m in the states we call them Gyno/Oncologist could be nothing hoping that’s the case OC is sneaky don’t put seeking a second opinion off time is of the essence with this crazy disease,

Cathhunt profile image
Cathhunt in reply toSaintgermain

Thank you

Lyndy profile image
Lyndy

Hi Cath, could you ask to be referred to a gynae specialist centre for a second opinion? It’s fine to wait and see with minor conditions…but you don’t want to take any chances with OC. I would encourage you to be as much of a nuisance as you can! xx

Cathhunt profile image
Cathhunt in reply toLyndy

Hi Lyndy , I think you’re right and I will pursue this , thank you

Lovedogs41 profile image
Lovedogs41

I agree with the other ladies,it’s so important not to leave this,especially with your symptoms.Doctors do get things wrong and I think your definitely doing the right thing by persisting.

It doesn’t matter if your being a pain,it’s your health on the line not theirs.Good luck!

Cathhunt profile image
Cathhunt in reply toLovedogs41

Thank you - I will pursue

Tesla_7US profile image
Tesla_7US

Go directly to an oncological gynecological specialist. CA125 is not elevated in early stages of ovarian cancer. TV ultrasound and abdominal ultrasound CANNOT DETECT early stage OC. Insist on answers and CT/PT scan. Get a second opinion from a specialist! I went to 5 docs and was fobbed off by each one. I have been fighting this disease for 7 years and am now stage 4.

Cathhunt profile image
Cathhunt in reply toTesla_7US

Thank you for your reply, i will definitely pursue this as quite worried and concerned

Ruebacelle profile image
Ruebacelle

No Something is wrong. 2nd opinion time doesn't sound as if your consultant is interested

Cathhunt profile image
Cathhunt in reply toRuebacelle

I agree , I will pursue further , thank you x

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