I have always tried to be positive and strong but I fear this last diagnosis 3 reoccurrence in less than 3 years, has really kicked me in the gut. I have had one round of Cisplatin/Gemzar and then one week later just Gemzar. The pet scan showed all in my lymph nodes and around omentum and possibly around bowel. CA 125 only 30. I feel it is not working but will not find out until a week and a half when the do then next blood draw at Dr's appointment. I was diagnosed Dec 2019 had extensive surgery Carbo/Taxol 6 cycles with avastin for one year. Came back in 8 months then Carbo/Doxil from June 2021 to Nov 2021 in remission and on Olaparib from Jan until June.....knew by rising CA it was back in May of 2022.....I felt it. CT scan in May did not pick anything up. BUT with pet scan in June found everything!
I am completely devastated and feeling there is nothing left but to give up................Dont we all just want a little more time. It is so hard when everyone family included don't understand how weak I am physically. No matter how hard I try to explain it. I am fortunate that I don't have underlying issues............YET...............but good gracious it would be so wonderful just to have one year of NED but I doubt that will happen as we all know the sooner it comes back the less time and options you have.
I was initially STAGE 3 C HGS NO Mutations ......nothing. They even sent out blood sample to specialty lab and still nothing that matches up to fight it..............
I am being treated at MD Anderson which is supposed to be an amazing cancer center and was so very hopeful
Losing hope in San Diego