When to the London Clinic yesterday, saw RK, what a difference from the last consultation in London.
She started off with the fact that there are still lots of possibilities and treatments out there, which lifted my spirits immediately.
Very briefly, she wants me to first do molecular testing for which I will have to return to London again and discuss with my oncologist the possibilities still left to me, such as Taxol plus Avastin weekly, if the Caelyx as stopped working, or going on to using other chemos, such as Gemcilabine, etc. Otherwise, to start a trial in London, with chemo and a immunotherapy pill.
So after yesterday morning when I woke with the feeling that the ascites was back and therefore the Caelyx and Avastin were already not working and feeling my sell by date was getting nearer, to yesterday afternoon with someone telling me the opposite you can imagine my mood is great.
So girls see we should never give up. Love to all you lovely fighters. Anne XXX
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Shorty864
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Hello Anne. I’m very pleased that this went so well for you. It has given me hope too! I see my oncologist this morning and can already feel his negativity. Hope and encouragement are vital aren’t they? Please could you PM me with the name/place of this consultant as I don’t recognise the initials. Take heart and go forward. Love Carolyn x 🌸
It is so reassuring that your team referred you to a place with so many options.
It’s actually kind of daunting to suddenly have so many choices.
Be nice if you could come off the Avastin soon, so you don’t have to endure those side effects much longer.
I can’t wait to hear about what choices you have as to clinical trials.
I am already hoping for another trial (particularly using a PARP with a new drug designed to increase its effectiveness) when my current trial finishes - 3 months down the line...
Have a happier Holiday season and hope to see you in London!
I think the trial with immunotherapy sounds good. For me I thought it best to go to London while I was still strong enough and keep the chemo to fall back on- just caelyx in my case.
Yes in fact that is how I feel, need to do the trial now while I am fit and well. The journey certainly takes it out of you, what with delayed trains, no toilets or just one, and no food. It is not good enough, when you pay such high prices for the tickets. Anne xx
You are absolutely right - I felt like saying, of course I did not, one option is more than enough!!
Actually a lady who is on this forum and lives in Cornwall and is also doing a trial, gave me her name and I told my oncologist.
Yes, my dear certainly sounds like a very good idea - to have something, not exactly to look forward to, but to give us hope - have my scan on Monday and see my oncologist on Thursday.
Here's to seeing you in London again - next time will be to do the molecular test - keep fingers crossed it's a Tuesday.
That's great news, I am so glad it was a better experience this time. I admire your bravery and optimism it has cheered me up greatly. We are all behind you and cheering you on, there are so many warriors on this forum it really keeps me going. Thank you! every one of you for your strength, compassion for others and sharing your experience and knowledge.
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Anyone from London?
It's back.
