Hi everyone again, just looking for anyone’s thoughts or experiences.
9 months of symptoms pain, bloating, heartburn and last 3 months have ramped up with August having new symptoms including heavy mid cycle bleed, left kidney type pains, increased bloating, pain in left ovary and all over tummy and back and leg pain! My period hasn’t arrived this month yet since mid cycle bleed so not sure what my ovaries are doing?
Had a private scan and found 53mm fluid filled cyst on left ovary! Everything else looks normal.
So Gynaecologist appointment today who says not cancer as CA125 normal! 🤯 and I shouldn’t be having all these symptoms for such a small cyst and not sure re bleeding as that’s weird.
Only way to understand is to do laparoscopy. He can see me privately for about £5k in early October or NHS clinic where it’s a 30-40 week wait!
Feeling much calmer about any immediate cancer risk though still mistrustful of a Dr who can say “well you don’t have cancer as CA125 is fine” so not sure I’m entirely satisfied!
He says cyst is unlikely to go by itself if it’s really been there that long and is causing all these symptoms and even if it did go he’d be looking at spleen, bowel, ovaries, stomach etc while he’s in there to see what’s causing pain, bleeding! Maybe endometriosis he said? I don’t identify with many of the symptoms of that though?
My mum has offered to pay for the surgery but I’m worried I’m being dramatic and should see what happens with my period and the next month of symptoms before I take her up on her offer! Or would you just get going as something not right?
Thanks, I know my problems are nothing compared to any of you but it appears you guys are more clued up on all things ovary, maybe more than my Gynaecologist so might have some wise words xx
Hi Ali that sounds a ridiculous waiting time for a laparoscopy and the cynic in me wonders if this gynaecologist is just after the private fees!
I would ring your GP and ask him what the waiting time is at your hospital and if indeed it is so long I’d ask him/her to refer you to another nhs facility with a shorter waiting time, you are well within your rights to do this!
And as this gynae has stated because your Ca125 isn’t raised it’s not OC I’d also doubt his knowledge base, not wanting to worry you but some forms of OC do not raise Ca125, I’m sure he’s based his opinion on other things too like your ultrasound etc and hopefully he’s right but I would want the laparoscopy doing much sooner than that as you need to know what’s causing your symptoms and resolve them as soon as you can!
Let us know how you get on
Bev x
Thanks Bev, I had the same thought! I know the NHS is in trouble but still!? I really wanted to make a smart comment about his availability nhs/private but don’t understand all the other stuff needed so knew I was being a bit unfair!
I had no idea you could go elsewhere so will ask my GP too. He’ll think I’m bonkers I’m sure!
I’m so confused on what’s for the best!
Thank you for your advice and will keep you posted on what happens xx
And yes I gave up a little at his CA125 comment and didn’t have it in me to say again to another qualified Dr that that’s not strictly correct as yes the fact that he can see the cyst on the screen may confirm. He says it’s a simple fluid filled cyst but unlikely to go away by itself at that size and risk of rupture/torsion so would take it out and look around while in there as something going on. Not sure if what is on the US could still be cancer? X