After over a year of doctors visits for weight loss I'm now down to 7st and diarrhoea, pelvic pain and severe fatigue, I finally had CA125 test, came back at 117, scan found heterogeneous solid mass on left ovary quite small, consultant gut feeling Endo burn out. I had Endo years ago had hysterectomy 16 years ago left ovaries no problems since. I'm 45 now and have been through menopause, this is my latest:
So the latest update, after the visit with Gynae Onc on urgent referral (which didn't go well) was very rushed and not able to ask questions or felt listened to at all, I had an TVUS where a mass had been spotted, but the oncologist has a gut feeling it is Burned out Endometriosis ( I had hysterectomy 16 years ago and left ovaries, no problems since), CA125 at that stage was 117, I asked for a CT but was refused and told I didn't need and would be put on the list (4-6 Weeks) for a Bilateral Salpingo Oopherectomy. However the following week they rang with me a cancellation for the Monday following (23rd January), so due to go in then. In the mean time I sought a second opinion from a private consultant and paid £1500 for a CT Scan, which I'm somewhat upset about. He thought it may be an irritated bowel that could also be causing symptoms along with the issue on the Ovary. The CT came back with wall thickening on the Bowel and small cyst on liver, nothing else really to report. He advised having another CA125 test (making sure it's the same lab) and said then you will know for sure, if it goes down. So I did, first one was on 28th Dec, second one 18th January only unfortunately it has now gone up to 125. Now I'm worried and don't know what to think, surely if it was Endo burnout left over on my ovary it would not increase. The Cyst/mass/tumour (this is what they have all referred to it as) is still on my ovary. I'm due to have the BSO on Monday and think that is still the right thing to do, but somewhat concerned with the symptoms I've been having and that again I'm not being listened too. I'm not sure it's bowel issue or ovary issue that has affected the bowel, as the symptoms seem more relevant. I'm just confused. Hoping to get an answer soon.