Today back at the hospital to see the clinical trials team. My ejection fraction is now 48% down from 52% last month.
I am now on a treatment break to allow my heart to recover. I will have echos every 2 weeks and will be seen in clinic every 2 weeks as well.
Once my heart recovers then I will be restarted on the trial at a lower dose. I can only be off treatment for 28 days
Hope all goes well and you recover before 28 day period is up. Good luck!!
Take it nice and easy and I am sure your heart function will recover, no stress allowed
do admire you....no washing for your mum(!) Keep us posted....love Chris x
Mum is home now and able to do her own laundry. My EF is just below normal so I should be ok no need to take extra precautions like that
goodo!!
Just another ‘blip’ keep focused and rest your body. Hopefully when you have your tests your rates will have improved. Thinking of you x
Good news. Results going in the right direction. All the very best Jo 🌼🌻🌺🌸🌹
I think you might have put this on the wrong post as it’s not good news
Oh bloody hell, so sorry. Guess I thought the fact that your ef was down was good. Made me realise how little I know. Heart problems with OC are not something I’m familiar with. I’m always looking for good news with this horrid disease. Doesn’t change my wish for all the best for you x
That’s ok I sometimes cross post its easy to do. It’s not the cancer that caused this but it is a side effect of the trial drug I am on. It happened a few months ago and I was off the trial for 4 weeks and my ef recovered. A normal range is 50-70% I am just worried that whilst I am off trial my pleural effusions might get worse that happened last time
Thank you for explaining. You’ve got enough on your plate without having to deal hapless types. Do hope you can get plenty of rest or whatever your body needs to recover so that you can get back to the trial.
Hope you your heart recovers sufficiently in time to get you back into the trial. Fingers crossed!
Hi, The heart is a wonderful thing💙💙 and I hope yours recovers very soon and you can be back on treatment ..love Lorraine xx
Fingers crossed xxx
Good luck and hoping you can stay on the trial
Keeping fingers, toes and eyes crossed that you can get back on the trial! Vicki x
Thanks everyone for your kind replies
Advice please if you don’t mind
Go on holiday or not?
here we go again!!
I was wondering.....
