Just thought I would post an update on life in general.
Things have been a bit stressful as mum fell down the stairs in her flat at the beginning of December. She fractured her pelvis, ribs and left hand. Had a few days on ICU whilst they tried to get her pain under control and treated her for a chest infection.
She is now in intermediary care whilst she has some rehab and her medical team are recommending her for rehousing, which we all want but it will present some financial and logistical problems.
I have been very busy running around trying to sort things out for Mum so feeling a bit stressed. It has been a huge distraction from my own symptoms but I have only had a bit of back ache and some mild shortness of breath.
I am still on the LOGS trial I am due a CT scan next week. My ejection fraction which is monitored as part of the trial has been slowly falling. At my last appointment it was 54% I think the trial protocols say at 52% they have to stop the trial but I can have one more dose reduction. Otherwise it seems to be keeping the cancer stable but it’s not clearing up my pleural effusions.
I did have an appointment last month for a pleurodesis but they had to give my bed away. I haven’t rescheduled as I have been so busy with mum and my breathing has been manageable