Hi everyone. My daughter has recently had a NED scan but CA125 is rising by very small numbers. She is currently on Niraparib 100mg but this may be having an effect on her bone marrow and she has been referred to an Haematologist. She has just received her Consultant letter which says that she may have some residual disease but her CT scan showed NED.
It looks like they want to wait and see.
Is there any other scan available that can detect any residual disease? NHS or private.
Any help and advice would be much appreciated. Thank you so much
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BrandyHorse
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A positron emission tomography (PET) scan is an imaging test that can help reveal the metabolic or biochemical function of your tissues and organs. The PET scan uses a radioactive drug called a tracer to show both typical and atypical metabolic activity. A PET scan can often detect the atypical metabolism of the tracer in diseases before the disease shows up on other imaging tests, such as computerized tomography (CT) and magnetic resonance imaging (MRI).
Just copied and pasted this for your information as it clearly explains what a PET scan is x
In this kind of situation, most oncologists will rescan in three months to see if anything "shows". This also gives over a bit more time to see what the CA125 levels do. Doubling is the most obvious indication of relapse, especially when levels rise above 35. It's difficult to advise here. Would more treatment be immediately available if an additional scan was secured or paid for? If this happened to me, the first thing I would do is request another consultation with my oncologist to get a more detailed understanding of the situation.
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