I've never been a fan of forums but, I'm lost. After knowing my news for the last 10 days I've only now been brave enough to research my diagnosis.
I'm about to start chemo in 3 days and I'm not confident of the treatment I'm receiving and if surgery is an option.
I lost my Mam 6 months ago to Ovarian cancer, she was diagnosed only 3 months prior.
I've now been diagnosed with stage 4B PPC. To look at me you would have no idea, I have had no symptoms apart from a lump in my neck. This was checked out at the doctors at the same time as having the CA125 test due to my mam's cancer. BTW, the test came out at 35, it has now risen to 48.
Turns out the lump is an enlarged lymph node. After a PET scan and neck biopsy it's been confirmed as PPC, however, scans don't show any tumours at all in the abdomen. I have however been told the nodes in my neck, abdomen and chest are all enlarged.
Due to the spread to my lymph nodes i have been told it is not good. I will have 6 cycles (4 months) of taxol/carboplatin alongside Avastin, where the Avastin will continue for another 8 months. There has been no talk of surgery.
I have looked at other posts mentioning Christine's in Manchester and Basingstoke re surgery. For you ladies who had surgery, had your cancer spread to your lymph nodes?
Unfortunately I don't have confidence in my consultant and feel like my diagnosis hasn't been fully explained (the last 2 hours I've spent looking at posts have given me more information than my consultant!), I have sought a second opinion from the Royal Marsden but as these things often can be, this is proving a logistical nightmare and I'm chasing my tail.
I don't want to start chemo and find out later on down the line that if I'd have known better, an alternative treatment was out there which would have given me a better chance.
So ladies, anything that you can help with would be gratefully received. Any options I may not have thought of, any specific consultants or hospitals or treatments, including alternative treatments.
I'm willing to travel anywhere to get the treatment which would give me the best chance.
Thank you in advance x