Good morning ladies and happy Sunday to everyone - have just been scrolling through and reading everyone's posts; I don't tend to post much myself as so many are going through so much crap with this heinous disease and I often feel I don't have much positivity to offer at the moment.
To recap I was diagnosed 3 yrs ago stage 3b high grade - had the standard surgery and chemo but have always recurred within a few months of completing chemo. I've just had a recent CT due to a rocketing ca 125 ( I did the ostrich thing and didn't want to know HOW high )!
I spoke to the CNS over the phone last week - it would seem all major organs are NED ( even my poor old liver which is where I've recurred twice before ) - but I have a 1 cm solidlesion in the pelvis and enlarged lymph nodes dotted around abdomen ( I've had enlarged nodes before but I guess new ones have sprouted like weeds )!
Whilst I'm thrilled with no major organ involvement I'm seriously beginning to question where to go from here - I see my oncologist on Tuesday but have any of you had something similar? Any trials anyone knows about? ?
At the moment I'm well with occasional twinges here and there but getting out there and living life with occasional bouts of tears and funeral planning - bloody hell! !!
Any experiences / advice or general kicks up the arse to pull me out of this sense of deflation greatly appreciated 💖💗!
Love to all - Maz xxx