This is my first post on this site although I have been reading a lot of your inspirational posts since March when my lovely sister was diagnosed, initially with Ovarian cancer but then with stage IV (A)CUP - (cancer of unknown primary) but treated likely Ovarian. She has been very poorly and was diagnosed as terminal with a prognosis of 18 months after being admitted with constant vomiting. She had 17 litres of ascites fluid drained in two sessions and they did eventually manage to get the vomiting under control with an NG tube.
Because she was so poorly after initially telling her that they would only start treatment once she was stronger, they had an MDT meeting where they decided to go ahead and give her 1st chemo as an inpatient. It was due to her age of 56 & previous health and quality of life etc as a much loved daughter, mother, sister and nana.
The chemo regime has been Carboplatin, Paclitaxel and Bevacizumab every 3 weeks. She has been at home for 5 weeks now but has been quite poorly throughout with only a couple of days where she felt slightly back to normal although she has tried to stay positive and fight it. She has required blood transfusions and her platelet count has been very low. She also has a DVT at the moment. She had a scan last week and has just come back from meeting with her Oncologist at Leicester Royal Infirmary. We were expecting to be told that there would either be a 4th chemo or a date for surgery to remove any tumours seen. We were shell shocked to be told that the scan has not shown any shrinkage of the pelvic adenocarcinoma so the chemo was not working and surgery is not an option. It is now a matter of weeks, possibly months and he advised her to take out any pension or savings she has and enjoy the little time she has left.
Any advice would be greatly appreciated. My first instinct is to get a second opinion - not to give false hope but I am very much aware that different specialists have different ideas and beliefs in the treatment of cancers. If we go for a second opinion how do we do this and how do we decide where to go? Will it affect her treatment from the specialists here in her home town?
Thank you in advance