I have not posted before but have read posts and occasionally replied. Originally I was diagnosed with Grade 4 PPC in February 2015. I had a large tumour, ascites, a pleural effusion and some activity in the lymph nodes in my chest. Initially I had 11.5 litres of ascites drained off, then 8 litres followed by a further 4litres. I was huge round my middle! I underwent the usual chemo but carboplatin only, I couldn't have paclitaxol with it due to a congenital heart defect. I had debunking surgery after the third chemo.
I was given 2 to 2.5 years to live when diagnosed. In July 2015 I was NED and have had blood tests every three months since. I am still NED. My Ca125 was 8 this week.
I am posting this to give hope to those of you who are newly diagnosed with OC, particularly if it is advanced. The prognosis can be shocking but it is only a number based on the average survival rates. That doesn't have to be you! My oncologist said to me on Tuesday that she normally talks about when it recurs but in my case it's now if it returns.
Based on my prognosis I shouldn't be here by now but I am enjoying life. Since my chemo ended I have been on holiday to France, Kerala, Vietnam and Cambodia, Dubrovnik and Montenegro, Italy and Brazil. I wasn't going to depart this world with regrets! I have more holidays planned and will continue to travel and enjoy life.
Good luck to all of you. Try to stay positive, even if it's a bad day it will pass.