I too am new to this site and I kinda wish I'd found it sooner. Having read through some of the discussions you are all so strong and supportive to each other!
My mum was diagnosed with Peritoneal Cancer in August 2016 and I've been her full time carer since then. She has had 9 weekly chemo sessions followed by debulking surgery followed by a futher 6 weekly chemos of Taxol and Carboplatin. On Monday we go for a CT scan and the hope is all signs of cancer are gone.
It took a long time for the doctors to figure out what was wrong with my mum, she had been symptomatic for several months before the diagnosis. Finally, mum paid for herself to be seen by a colon specialist who performed a CT scan and found masses of fluid on her abdomen and lots of cancerous tumours. It was a further two weeks before a Peritoneal cancer diagnosis was confirmed and my mum had an added mysterious complication of a disappearing platelet count. We were told the likelihood was that the cancer had spread to her bone marrow and there was nothing they could do. She had only a few weeks left to live.
We decided to contact the Christie hospital in Manchester for a second opinion and thank god we did. They performed a bone marrow biopsy (the previous hospital wouldn't do one as they felt it wouldn't tell them anything they didn't already know) and found no cancer there at all!
So my mums new consultant worked closely with a haematology oncologist to support my mum through chemo and 7 months down the line we are looking at a period of possible remission And her platelets are back to normal!
My mums consultant has decided to publish a report on my mums case as it's rare to have an immuno response to cancer which caused her own immune system to attack her platelets. He's doing it in a bid to prevent other cases of misdiagnosis which would ultimately have lead to an unnecessary death.
I suppose I also want to get the story out there as it's not impossible for this to happen to someone else and all the oncologists and haematologists at our local hospital had no idea what was really going on with my mum. I'm so glad we sought a second opinion because we almost didn't.
Sorry this has been a very long post and if you've got this far Thank you for taking an interest! Who knows what will happen for my mum in the future but at the very least we have more time with her.
I wish all of you the very best on your treatment journeys and if i can be of any help to any of you it would be my pleasure.