PPC ovarian cancer

[Menaiw]

Any on this forum who has ppc, after chemo the first time I’m March 2117, my ca125 went down to twelve, had three month rest and December 2017 went up again, had chemo again last January which was Carbo/ Gemcitabine, had to stop gemcitabine it was doing more damage to my bloods,carried on with Carbo but had to stop the last one as it was affecting my bone marrow more than the cancer just staying around the 88 mark, then it shot up to 217, now I’m on 12 doses of taxol for 12 weeks with a week off after every three, I am getting so disheartened and frightened, I had stage 3 ovary peritoneal and spleen. What frightens me is my age and they can’t operate because it is to close to bowel and bladder. Thank you everyone.

[Eriksendi]

I have stage 3 PPC. Completed my chemo last November and ca125 remains at around 12 where yours was. However scan now shows a lung nodule so awaiting PET scan. I can’t help with other chemo regimes yet but I am sure there are lots of other ladies who like you have not had surgery but will be able to offer advice. There are quite a few of us with PPC on here. Sending best wishes for your treatments x.

[Menaiw in reply to Eriksendi]

Thank you so much for your reply, it’s hard to try and keep positive sometimes, but I will keep my head up, thank you again

[Welshandproud in reply to Menaiw]

I also have stage 3c PPC diagnosed in September 2016. My ca125 went up to 10400 but after chemo, surgery, more chemo and avastin it's gone down to 23. I'meant afraid that I can't give much advice about your chemo as mine was carboplatin and weekly taxol bit hopefully someone on here will be able to help. Is it worth asking for a second opinion? Sending my best wishes x

[Menaiw in reply to Welshandproud]

The highest mine has been is 340, so maybe I’m lucky in one way, it’s like one step forward and three steps back, my oncologist is very good and I trust her, it’s my body is very weak, hopping for a miracle. Thank you for your reply it has helped. Hope everything is okay with you and everyone on this forum. Best wishes to you. X

[Welshandproud in reply to Menaiw]

Hold on in there Menai. You are so much stronger than you realise. You can do this.

[IrishMollyO]

Hi there

I was diagnosed with stage 3c high grade serous PPC in 2011 with a CA125 count of 8000. Inoperable so had 6months of Carboplatin/Taxol and had the end my CA125 was back to normal and I was pronounced NED.

I remained NED until 2016 when I had recurrence in my Peri Aortic lymph nodes. I was treated with Carboplatin and was pronounced stable at the end .

In 2017 I was diagnosed with unrelated Lobular Breast Cancer . I had a mastectomy followed by Radiotherapy and prescribed Arimidex which is Anastrozole an Aromatase inhibitor . This is supposed to prevent recurrence but I believe it can also prevent recurrence of my original disease so I’m happy to take it . At the moment I’m on a three week break from it to see if certain symptoms are caused by it. If it has they will just change me to an alternative Aromatase inhibitor.

Last month after a scan result I was given the unwelcome news that I had a lung nodule along with the same lymph nodes swollen again. I was given the option of getting treated immediately or watch and wait until 2Oct . The oncologists advice was to watch and wait so I will be rescanned then and if there are any increases in size I will be given Carboplatin/ Taxol. I have every intention of fighting this again as I had no major after effects apart from fatigue.

I just want to wish you well and tell that you can do it. You mentioned your age but I don’t know if you are very young or the same as me which is 73. Whichever it is stay hopeful and get a second opinion if you are not happy with your present plan for treatment . The women on this website are wonderful and spurred me in so many times and they will keep encouraging you too. Take care

XXX

[Menaiw in reply to IrishMollyO]

Thank so much for your reply, you have given me hope, I can’t imagine what you have been through, you are so brave and strong, when you hear what other women have gone through it opens your mind, I will be 71 in February, I will definately think positive from now on. I wish you all the very best, you take care as well. Xxx

[IrishMollyO in reply to Menaiw]

Hi there

I’m glad I have given you hope. I am not any braver than any other woman here and indeed most have gone through much tougher times. Until I got this diagnosis I would have considered myself a bit of a wimp. I found that once you are offered treatment and that there’s a definite plan then you just get on with it. You get used to recognizing when your good days will come and prepare in advance for the bad ones. These days there’s a pill for everything such as pain and nausea . Let people help you on down days and accept any pampering that comes your way . Any time you need to vent your frustration at this illness just post on this website and you will have lots of lovely women replying with comforting words of advice. Take care

XXX

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