b****r, got my results this afternoon after ct scan last Thursday after my ca125 went from 20 to 80 since January. I only had my last chemo in Dec grrrr, I was hoping for a lengthier time in between, I had over 2.5 years from my first diagnosis.
Well the sod is back in the peritoneum again. Doctor thought maybe I have gone platinum resistant even though I am BRCA 1 but wouldn't know for sure unless I have some more platinum chemo?.
The only good thing is that I feel well (I didn't even have any side effects until the day after they told me it may be back- not sure if that was physcological )and my appetite is normal. Because of this I am waiting for a few weeks unless I start feeling unwell then luckily I will have the choice of 2 trials. A parp inhibitor/chemo trial or an immunotherapy trial.
I took part in a parp/placebo trial over two years just after my first line chemo finished so they will have to get my details from drug company first to see what I was on - as if it was the parp I won't meet the criteria.
So rubbish results but a yay to being eligible for trials😀
Has anyone been on either of these type of trials? It would be interesting to see how you got on with them . Sorry I don't know the actual trial name as waiting for the doctor to email the information to me .
Big Fighting pants well and truly on and pulled up high 😀😀