A week ago today I posted that I was in hospital awaiting my extensive radical surgery the following morning. Thanks for all your well wishes and advice, you are all truly amazing. Well what a week it's been.
I have had full hystrectomy, diaphragm, liver, bladder, spleen etc.. All scraped of evidence of any cancer, my large bowel removed and replaced with an illiostmy. (Think that's how you spell it) and a puncture repaired in my diaphragm which was caused while performing this 9hr surgery.
I spent two days and nights on high dependency because my blood pressure dropped so low they thought I might have an internal bleed and may have to be reoperatred on. I have been fed through a tube up my nose, had various amounts of different drugs and had two blood transfusions.
After arriving on the ward I was extremely tired and fatigued and didn't have any energy to move at all.
Recovery has been a lot of resting, physio (very difficult to push yourself) and slowly integrating food and water back into place. All of which has been hard but manageable.
Today however they have decided to remove my epidural. I cannot believe the pain I now have. I can't even pull myself up the bed to get any sort of movement. I'm sweating like you wouldn't believe and feel like Iv just taken a massive step backwards with my recovery. The pain killers they have given me don't appear to be doing anything but I need to get the right combination they keep saying? It's horrible just laid about in pain. How long will this kind of pain last?? I know I have to cope but it's getting harder not easier,