Dear All - I'm sorry I've been a bit absent and have barely read anyone's posts of late so sorry if I have missed anything major (I know about Claire, sadly - I was still active on the board at that point.
Some of you have asked me to keep you updated following my big surgery at Queen Charlottes. I seemed to be making a slow but sure recovery from the enormous surgery but was very fatigued with poor appetite. Christie didn't feel they could start my chemo as I was too weak so it kept being put back.
Two weeks ago I became quite ill with spiking temperature and was admitted. I discovered much to my shock from scans that the cancer is back already! Quite a bit back in my liver though it looked clear following surgery only 9 weeks before. There is also some kind of mass in the abdomen. Needless to say I am absolutely gutted and it's been a very emotional time. It does make me feel like I'll never get rid of the beast though I try not to think that way.
The good news is I am out of hospital and am booked for chemo next week so my only hope is the chemo will get things back under control which it should, fingers crossed and perhaps then I can have a break from all this and actually feel well. I don't think I've felt well for so long now it's getting hard to remember how it feels...but you know, I still live in hope. I'm still finding positives and have some amazing people around me helping me through this.
Sorry if I sound a bit whingey. I've been putting off putting this on here as I wouldn't want anyone to be put off surgery because of my results. I believe the surgery was done extremely well by one of the best surgeons out there but there's some things you can't control.
My chemo by the way is going to be calyx/carbo so any tips greatly received. I've had carbo before but not calyx.
Wishing you all well and thank you for being there.
Love Mary xxx