Hello to everyone and a Happy New Year to you all.
The surgery and my recovery has had its ups and downs. They removed all the cancer and have confirmed that it is 100% low grade cancer (not high grade as previously diagnosed) and so the prognosis is that chemo is not likely to work on me, but it should be 8 years or so before I need any more surgery. The low points were that the surgery was a bit more complicated than my surgeon anticipated and so I was in surgery for 10 hours rather than 6 hours which meant he did not go ahead with the stoma reversal. I also had more of my bladder removed than expected as the disease was deeper than just being on the surface of the bladder. Other low points were when my bowel went on strike in protest after the surgery and I ended up having an GN tube for a few days, as I was constantly being sick, which was not pleasant either.
So my stay in hospital was a little longer than we planned - I was there for 15 days - but I have been home for a month now and so the bad memories are already a dim and distant memory (no need to dwell on them) and overall I am pleased with the result. Now I am feeling better its so much easier to be positive, but when I was feeling poorly, I found it very difficult to cope mentally (lots of tears in the early days, but all good now)
I had my 6 week check up with my surgeon on Tuesday and he is very pleased with my progress. I feel my recovery is very slow - certainly much slower than with my other surgeries, but he says this is to be expected as I had so much more done this time. I am still a bit anaemic (am taking iron tablets) and so can get a bit dizzy if I get up too quickly, but other than that I am fine and just taking things really easy.
Wishing the very best for everyone for 2014. Vx