I am presently on Avastin post chemotherapy which I completed in September
I was diagnosed with stage 3 ovarian cancer I had chemotherapy and a total hysterectomy there was no lymph node involvement and no other disease visible to the surgeon
Ii responded very well to the treatment and was doing well on Avastin with a clear scan in March
Unfortunately my ca125 is elevated since and I fear the worst in my next scan which is early June
Wondering if anyone have had similar experiences
Peggy
Hi Peggy, pre scan anxiety is just the worst thing, my situation is different to yours in that my ca125 has remained normal since after my first chemo but I can completely relate to your pre scan worry , its even been given a name now 'scaniexty'. I have scans every six months and the only way I can reassure myself is to say that if anything shows up it has to be fairly new so it'll be treatable. I was originally diagnosed in 2015 with a recurrence in 2017 but my last scan in February was good and I'm well thank God. I hope June goes well for you 🙏
Thankyou for reply and reassurance appreciate it will let you know results
Hi Tvam, Di you mind me asking was your OC stage 1/2/3. Mine was Stage 2 a reoccurrence now in 2024. My marker is 18 only. Are you on a park inhibitor because of reoccurrence. I’m putting out Q’s but no reply’s. I’m Brca 1
best of luck with your Scan Peggy
Hi there, my staging was 3 back in 2015, ca125 was 144 and it returned to normal after treatment, recurrence in 2017 was identified on routine CT scan , no rise in markers . I had more surgery followed by chemotherapy, carboplatin and gemcytabine, I've been on letrozole 2.5mg( aromatase inhibitor )daily since and thankfully all has been well. At my last check up it was decided to reduce CT scans to once yearly so that's very positive. I'm BRCA negative. Wishing you all the best, hopefully you'll get over this 'blip' on the journey without too much difficulty 🙏
Tks for that I have been told over last 3 years no need for scans as nothing there to scan and my markers went up to 18 and I just said I was a bit bloated and they gave me a scan and found to small growths. I’m just fearful it will keep coming bk even after this. But you’ve been good since 2017 which is positive
It's tough to deal with a diagnosis, a recurrence brings a whole new level of worry and anxiety for sure and to be truthful it never really goes away but you just get better at coping with it over time. Thankfully I feel great but still get nervous coming up to check ups etc. I try my best to just get on with it and not think about it but easier said than done sometimes. Every year New drugs and interventions become available so if we run into trouble hopefully there'll be something available to fix us up again. Best of luck
Well...yes. many of us have recurrences we then proceed usually to a new round of chemo. Good luck hugs from paris
Thankyou so much for good wishes and encouragement appreciate it very much
Hello Peggy, I also was diagnosed with Stage 3 Ovarian Ca. in October 2017your probably told you that you can get a false positive result on the CA125 blood test ie its not totally foolproof
you wrote that your last scan was clear in March & that your disease was localised with no lymph node involvement which is very positive.
cancer is a bumpy ride for us all, it is normal to be fearful of a raised CA125 , the scan may reveal an issue to be dealt with and a plan will be put in place if required.
wishing you all the best with the scan
Maria
I just wanted to let you know Ias you know I was very anxious about my scan as my ca125 was raised wWell I had the scan and there was no disease evident so I am grateful for that
Oncologist did start me on Arimidex as studies are showing its effective in oc treatment so for now I am relieved
Choosing not to have more chemo
3rd Line Treatment Report & Cold Cap
Dublin lets be having you.
Diagnosed stage four
Primary Peritoneal Cancer
