Hi - this is my 1st post though I have posted a question related to my condition. I was diagnosed with RA 3 years ago, though was wrongly diagnosed with Sjogrens a year before that so missed 12 months of effective treatment. I have gone through the usual treatments - MTX, Leflunomide, Cimzia, Enbrel and Rituximab, which I tolerated till my 3rd session at the end of December. I then had a bad reaction near the end of the 1st infusion and am unable to have it any more.
My main issue lately has been 2 doses of shingles and repeated abscesses in my groin, armpits, waist and back. I have not been longer than 2 weeks without antibiotics since August, which has meant very erratic MTX doses. My GP says it is likely to be hidradenitis suppurativa, which I have looked up and sadly it does seem to be the same symptoms as I have.
Just wondering if anyone else has this as well as RA? The treatment is long term antibiotics which then means I will be unable to take RA meds. I'm feeling very miserable at the moment, waiting to see if 2 weeks on 2 new antibiotics will shift the egg sized abscess on my back or if it will need surgery as my GP suggested. I have an appointment with a dermatologist in March. My neutrophils are also very low at the moment - not really sure what that means though. I go back to GP next Weds but am hoping to go back to work on Monday, having been off with a bad chest infection for 2 weeks.