Update 3rd week of mtx.: Hi everyone,I hope you are all... - NRAS

NRAS

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Update 3rd week of mtx.

Shell1967 profile image

Hi everyone,I hope you are all well,well you know wot I mean :))).just a quick update for you all,I hav just taken my 3rd lot of mtx,and so far so good with this tablet,just a niggly couple of side effects so far but manageable.im not sure when and if I will start to feel benefit,but going with the flow.we went to bath for the weekend with friends,it was my friends birthday and we had arranged with her husband a long time ago to hav this weekend away,and we thoroughly enjoyed ourselves.we ate at a macro Pierre white both nights and food was outstanding,so yummy !!! We went to bath for the day on Saturday and what a beautiful city that was,me and my friends looked round the shops while the men found a pub with the footie on,we had a fab time,shopping,stopping for lattes and sightseeing.i came home. Ery relaxed and happy,managed with ibuprofen and a couple of zapain and was totally fine both days.up this morning to my 3rd lot of mtx as you know,I have my first blood test later,as fortnightly for 6 weeks to make sure my liver is tolerating it.;(I pray it is).could anyone tell me if there's anything wrong will they ring me ? I'm having the test at my gps so will my rheumo nurse get my results in time to ring me if anything wrong before I take my next dose? Thankyou I'm off to work now but will catch up with your answers later,take care all of you love Michelle xx

12 Replies

Michelle,so glad you had a good weekend. If your having your blood test down the hospital, your rheumy would get get them the next day. Thats what happens with my hospital. So you can ring your rheumy and check also the same with your gp. My surgery can access the hospital and check your blood results as well. So check with them the day after. Sylvi.xx

Hi Michelle. I've just come back from my surgery having my blood tests taken by our practice nurse - and have only had dodgy liver twice so far (both times after a small amount of alcohol so I avoid it totally now) and both times my GP has phoned me later that day to advise me to go down a dose for a few weeks. But I always get my blood taken on Monday morning and take my MTX on Tuesday evenings so I usually just double check by phoning the surgery and asking if they've been checked and cleared or not on Tuesday morning. I don't have a rheumy nurse and the hospital my rheumy comes from is far away on the mainland so I guess my situation might be different to most people's. Glad you enjoyed yourself in Bath. Tilda x

Hi...I tried Metho by tablet and was awful off it... I was very sick, running to loo and staying there for a long time, migraine and soo tired..probably not helped by my inability to eat as was so sick. These affects only came on after a few weeks and a build up of the drug in my body. I am glad to hear from someone who is tolerating the drug and I hope you get brill improvement from it too. I was told from 6 weeks to 3 months before benefits would be felt....Good Luck xx

Thanks everyone but this last message from Susan has worried me:((((.i thought after 3 weeks my body was tolerating it well and thought I will be ok now,but after reading this I think I may be wrong,so I can still be prone to more side effects and may not tolerate it too well and get worse on it? Thoughts anyone ? Thanks Michelle xx

jonsi profile image
jonsi in reply to Shell1967

ohh shhhh im starting MTX in the next dew days LOL

Shell1967 profile image
Shell1967 in reply to jonsi

Do not worry at all please !!! I'm now on week 11 and doing great no problems wots over.xxxx

jonsi profile image
jonsi in reply to Shell1967

awwww thats good , im glad you are doing well on them xxx

Shell1967 profile image
Shell1967 in reply to jonsi

Jonsi read my blog I wrote today as I'm now on week 11 xx

jonsi profile image
jonsi in reply to Shell1967

yeah i did , its great news, in so happy your having great effects with it, hope it works same for me

thanx xxxx

It is generally well tolerated Michelle - remember you often hear the few bad stories on here because the people who are just getting along fine often don't bother coming on here as much! We are all different in the way we respond to drugs. I had a really bad response to Sulphasalazine but was fine on the MTX until I got up to 17.5mg and then something snapped and I became very sick - but I am also taking Hydroxichloraquine and believe that it's the combination that helps me but also the combination that can make me feel quite sick too. That's why I'm now on the injectable form. Tilda xx

Totally agree Tilda ...fingers crossed you will continue to be just fine Michelle, and as Tilda said it is generally as I hear well tolerated ...and if for whatever reason you dont do so well at any time, i am sure there are many other things to be tried ..we are all in this together C xx

Hello, firstly hope yhe MTX works out for you.

Please remember dif people react to drugs in dif ways.

I too am on MTX and have been for about 8 yrs But its only in the last two yrs when mydose went up to 25mg that I have started to have side effects.

I find my memory is apalling as is word recall... I nowget "withdrawl" type symptoms the day before my next dose and must take folic acid the day after to counter headaches.

So, it seems to be about finding the right balance, individually speaking.

All the best. Farjer

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