Mtx

Hi all

I hope wherever you are in the world that the sun is shining for you today ☀️☀️

Just updating in my mtx use. I had to stop for a week whilst bloods were checked. All ok and took my third dose yesterday (along with anti sickness med) and am so happy to report I've no nausea no headaches and had a great nights sleep for the first time in a long time. 👍👍

My reduced steroids has meant pain is increasing slightly again but am hopeful that once mtx starts working that'll change.

Have been approved to go back to work on a part time basis and although I've had a couple of 'wobbles' I am off cigarettes for the first time on 30 years. So all in all feeling great ....this RA diagnosis WILL NOT defeat me.

Thanks again to everyone for their support and encouragement on here. Wishing you all a pain free and hopefully sunny day.☀️☀️🌸🌸

Sharon

16 Replies

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  • Great news Sharon. As for your "wobbles" on being smokefree....it took your body a long time to be addicted to cigarettes. So one could reason, it will take your body a long time to stop the cravings. Once I got this idea into my head, I forgave myself for the odd puff and just got back on track. Don't beat yourself up, pick up your socks and you will be smokefree with no cravings in about 2 months. :)

  • Thanks Suzanne great advice, as usual! How are you getting on back at work? Hope all is going good for you.👍

    My doc appointment went well, have been approved to return for 4 hours a day initially. Just waiting for paperwork now.

    Hope your boss has been kind to you this week.

    Sharon 🌸

  • That's awesome news about your job. You go girl!!

    I'm doing fine, but the fatigue!! I never knew I had fatigue as a symptom. So I nap before & after my 4 hr shifts 3 days aweek. I don't think I can increase my hours unless I can bring my pillow.lol

    My boss thinks I am on a gradual return to work program that ends in June. I am not. My paper work says To Be Determined. He also has this paperwork. I don't think he realizes that it is my rheumatologist who sets this date, not him. Oh well Ce la vie. It is not up to me to inform him. He should know this and if he doesn't, then he should know his job.

    When you get your paperwork, read the date that states when you should return to full time. I bet it will say the same as mine. TBD means To be determined.

    We can do this Sharon, keep your paperwork in a safe place.

    All the best to you Sharon :)

    Suex

  • Awe I'm delighted it's​ going ok for you. Shame about your fatigue. Keep taking the Naps.

    My company doc warned me about that and wouldn't agree to a 3 day week of full time hours saying 8 hours in one stretch would be exhausting and he preferred to recommend only 5 4 hour days instead. This is not what my line manager had in mind. Am happier tho i think fatigue will play a big part for me too.

    I'll make sure I go through the paperwork carefully though. I'm supposed to be on a gradual return to full time too but with no end date was agreed.😀

    Here's hoping our bosses just focus on someone else for a she and leave us to it....

    Lots of luck ❤️❤️

  • Oh I'm so glad your company doctor has stated p/t with no end date.

    Did I say glad? No, I'm thrilled!!! If I wasn't so fatigued I would be dancing :)

    Keep intouch and we will get through this together :)

  • Don't you be wasting your valuable energy dancing on my behalf!! 😉 I'm doing a little Irish jig for us both....(mentally anyway).

    Will definitely keep you posted. And thanks again.

    Shazz 🌸🌸

  • You are doing brilliantly shazz and that positive attitude may take you further than anything else! Best of luck going forward.

    Marie

  • Hey Marie ...how are you doing? Have you healed from your tooth extractions ? Painful! Trying so hard to keep a PMA..there are hours..even days where I can't manage to and feel very sorry for myself 😞😞 but I eventually have a strong word with myself so on the whole it's onwards an upwards.😀😀👍👍

  • That's all any of us can do shazz. Mouth feeling much better, thanks for asking.

    Take care and stay positive

    Marie

  • Oh Marie, you must know that I'm very curious about your teeth extractions....please don't hold me in suspence......I just gotta know how you are doing.

    Your buddy,

    that Crazy Tooth Fairy, aka, Sue :)

  • Haha hi sue

    My moth is feeling much better thanks. It remains tender but nothing like the pain before.

    I'm always mindful of your experiences and much more aware, thanks to this forum re oral health and RA altogether. I will certainly keep an eye on things.

    Hoping your still going from strength to strength .

    Marie

  • Hello Marie

    My husband is now calling me The Crazy Tooth Fairy, he always knows how to make me laugh.

    My excitemient about my RA vanishing is vanishing. I am stronger and back at work, albeit p/t, but I still have RA. Dang!!!!

    I'm glad you are feeling better. Hopefully your RA will calm down as mine has.

  • Hi Sharon. I am hoping my methotrexate will help reduce steroids for me also but I am not having much luck so far. I reduced from 10 mg of prednisone to 6 but I'm very sore as a result ... and taking 15mg of methotrexate. I'm trying to be patient. Good luck to you!

    Connie

  • Yea it's the same for me 15mg mtx and I'm now down to 7.5mg pred but really feeling the difference. My comfort level of pred seems to be 10mg. But here's hoping mtx will kick in soon. Patients is indeed essential with RA it seems.

    Sharon 🌸

  • Yes ... patience indeed with this drug. I had some difficult side effects at the start but they have subsided now. Please keep me posted on your progress. I am reducing my prednisone veeerrry slowly. 😉

  • Will do Connie. And likewise keep me posted with your steroid reductions. Fingers crossed we will bothget off the pesky things soon😉

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