4 weeks ago I had an emergency appt with the rheumy nurse as I had been feeling soooooo bad and miserable. Nurse consulted with the rhuemy and decision was made to increase the MTX dosage and refer me for an urgent appt for an Ytrrium injection.
At the beginning of the following week it occured to me that I didn't ask how long I might be waiting for said injection so rang the nurse. Around 6-8 weeks she said - the referral has most definately been sent she said. If you don't hear anything in two weeks call me she said - no, no point trying the secrataries she said call me she said.
So yesterday I tried to call. Answer machine full, cannot leave a message. Hosp switchboard put me through to the rheumy secretaries. No can't see any reference to a referral on your record. Clinic letter is in draft but not sent. No we can't send anything as it's done by the secretary at the community hosp where the appt was, not at the main hosp. No can't get a nurse to call as they are short staffed which is why their message box is full and not taking anymore.
So rang Nuclear Medicine to follow up the referral and - left a message. Rang the rhuemy secretary at the community hosp and - left a message.
The rheumy sec rang back - yes the referral and the clinic letters are written but have not been sent - why? The nurse is on holiday and until she signs them they can't be sent. She'll be back on thurdsay. Secretary promises to then fax the letters over. 4 weeks after the clinic appointment!!
The lack of clinic letter is also creating problems as my MTX dosage was increased but my GP won't change the prescription until the get the letter so I keep running out - I think they suspect I might be dealing them on street corners or something.
Luckily the secretary in nuclear medicine also called back and was very helpful, despite not getting a referral letter yet. She has reservered the first available appointment for assessment for me (bearing in mind this is only available because of a cancelation) 31st July!!! And this is an assessment, not the injection itself.
I shall be seeing my rheumy before then - longstanding appt made in December last. I shall be having a good old moan.
Meanwhile......I suppose I just struggle on.