Well that's it then. I am better now. Thank you very much. You know I have been waiting to see the almighty one (my rheummy consultant) since I first saw him in october. I had so many questions, and I got a few in, whilst he was ducking and diving and trying to gather his papers up into my file and shuffle me off, because I am obviously better now. Didn't he tell me he would get me better... errr can't recall actually. I told him I remember him telling me off because I was late and as I was the first appointment of the afternoon, I would make everything else late and that I was responsible for upsetting his patients. Ah yes he says I remember you now. Cheeky monkey!
Well the Mtx seems to have done the trick - 20mg each week - keep doing the bloods once a month. Do you get sick, nausea? I did, but that has subsided - alot - but seem to get loss of appetite on and off. Hmmmmm. If it gets too bad you can have the injection. I would really like you to stay on the old Mtx because its working Great!
Any way, he says according to my last blood test on 20th April (which I insisted the nurse and the GP ask for a CRP because they normally only do the liver function and RF factor) I am now normal. Ta. So I says how come I still feel crap and tired out and my knee still hurts and my wrists hurt and my hips crunch. Ah well you have OA as well you see and that will be what it is. So?...... And.... you have to back to your GP. Oh ok then.
What's my ESR then? Don't do that here, hospitals and different regions do different things and depending on which lab you send the blood off to, depends on what results you get. Well all I can say is. I am glad I am the blooming patient and not the doctor. Bless him. Then he went off on some story telling me he trained in Oxford and they do this, that and the other fanny fangdango. Right. I say he lost me when he said Oxford really?? But he told me my CRP was >8? 8 is normal, so I am below normal... or is that sub-normal, subtle difference methinks.
How you sleeping he says. Well that depends sometimes ok sometimes not, but I have just had nearly a fortnight of fatgiue and get off alright but wake up around 4 and then can't get comfy and have to take more painkillers and then I can't get up at 8 to get to work. MMmmm that's the RA some people don;t have the fatigue, some (a minority apparently) do and some people find that the fatigue goes away with the RA symptoms and some (very few) find the fatigue stays with them. Right. You can have minor flares, this might be a minor flare... Oh even though bloods say not. Oh yes..
What about exercise then I ask, because I feel unfit and don't know how much i should do. Ah,... better check the lungs... check lungs... ok nice and clear. I suggest you go swimming he says. I say my local pool has closed because more water comes in through the roof that they have in the pool. Ok.... go to the next nearest. Ok I say... Ta.
What's happened to the Physio appointment I was told I was going to get. Ah no you were referred to Occupational Therapist, No I said Physio therapist because it's splints for wrists I need to work with... Love nice homely Nurse Jenny then comes into the room. Beams at me asks me how I am, how I am doing on the old Fluoxetine and Mtx, asks if I have sorted my family out and put them right, Asks how I am sleeping, how my hands are and my knee and back and all sorts of other things. Doctor sits there like a gooseberry, looking at his watch. Right.
Lovely nurse Jenny says good to see you feeling better, blood results last time were normal.... thanks nursey. I have an idea that perhaps nursey should be paid consultants wages and consultant could be sacked. Think of the saving....
I always knew I should run the blooming country. Me and a few other females...
get it all sorted..
So that's it then, give this bit of paper to receptionist and I would suggest you see nursey in 4 months and you see me in 8 months...Okey dokey. Hop skip and jump, I'm out.
I really don't know what I expected....hope this is useful to someone. It helped me heaps... I think.
See you on the Christmas Tree? (My old dad used to say that - I haven't a blooming clue what it means!) Answers on a post card please, ta.
Lots of love peeps, and go careful out there. It's a blooming minefield.