I have not been on for a while but I have been busy
On the 23rd March my daughter had her knee reconstruction operation. She ended up with 4 pins in her right knee and a replacement knee cap. Her ligament was replaced with the hamstring from the back of her knee. She was in hospitial for 4 days and now has to wear a brace from her hip to her ankle all the time.
I have never seen a girl in so much pain!! As a mom it hurt me so much. She has also had the blood test for the rhumatoid factor and she has been told she has it. I now understand the guilt my mom feels for passing it onto me. She is only 18 my beautiful kind hearted daughter and she does so much for me when I am in pain.
I have knicknamed us tweedle dum and tweele dee. It is hilarious in the morning and the evening when we have to take off her brace to get her dressed. My sausage fingers are not the best tool to handle all the velcro and becks can't bend to help me. Washing is fun as well as we only have a bath. I have found interesting uses for bin bags!!!!
She has managed to go back to college with me doing all the driving.
Work has been it's usral helpful self but this time I have a lot of understanding. Shame they are not so understanding with me. I have now got to go to Teeside for 4 days dispite the fact I have told them I cannot drive all that way and I am the only carer in my family. Oh if only I could win the lottery
My husband - well good news there. He has been selected for the new drugs for MS Suffers. He is going to be medically retired from work and his rehab nurse is going to find him some more sutable work. I feel like there is a little chink of light at the end of the tunnel.
ME well I am exhaused - the Cimzia is controlling the swellings but not the joint pain. I am going to go back to my nurse on the 26th oif this month to discuss.
All in all things are jogging along apart from me fighting the Department of works and pensions on the EMS and DLA for my husband.
I have been logging on from timne to time to see how you all are and my heart goes out to you all
I promise to logg on a little bit more now things are settling down
Love to you all xxxx