Hello everyone

Hi everyone

I'm back!!!!!!!!!!!!!!!!!!!!!

Progress

My life is getting easier. My beautiful daughter is hopefully having her brace of her knee tomorrow. She is is walking bending and back to normal health. She even has a new boyfriend who is lovely. Is is so wonderful to have her happy. She has been accepted onto her Level 3 of her course for next year.

My husband is getting there. He has joined a MS therepy centre where he is having pressurised ozygen therapy. He sits in a pressurised tank and breathes pure oxygen for an hour each day. It is not the oxygen that has made such a difference it is the centre. He is so positive and I am getting my husband back. He even drove a short distance on Sunday - the first time in a year. I am so happy, I sat in the car today and shed tears of happiness. I must have looked such a plonker!!!

Me - well my RA is painful, I have been diagnosed with Fibromyalgia. Many people may say Oh God something else to worry about, BUT!!! for the first time in 3 years I feel like a light has been switched on.

I have for the first time since I was disgnosed with imflamatory RA feel like I am finally getting answers. I have got to have steroid injections - my husband says I better not drink any more as the liquid will spurt from all the holes my injections make.

I have had some very dark days and I would be lying if I said I am not scared. I can't do as much as I used to and it is so hard to accept that I am not the person I was. I tried to get out of the bath weekend and I couldn't do it even with all the aids I have.

But my work are having to accept things or they will when I have been to the doctors on Wednesday and get signed off. Well I have been giving them fair warnings

I hope everyone is fine and dandy - I have been keeping an eye on you all through your blogs and I will be going on more often.

All we need to do now is move. I am trying to sort this out but keep hitting brick walls. It will happen eventually

Stay safe warm and well everyone

Susanh xxxxxxxxxxxxx

8 Replies

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  • OMG - what an awful time you have had and are having - I will say a little prayer for you and hope that everyone feels better soon -

    Keep your chin up and take care

    Pen :)

  • Hi Susanh,

    I don't know you from before. You have been having a hard time.

    I'm glad things are slightly better for you and your family.

    My husband has Parkinson's ( he's only just 50) so we are a right couple at times, he has just had his meds increased and I must admit he is a lot brighter and happier at the moment. I am fairly pain free at the moment, just a few niggles here and there.

    I hope everything carries on positively for you and you manage to move.

    All the best

    Mary

  • Hey Susan you are a brave one - and on this site that's saying a lot! Take care and good luck - really hope your husband's improved state of mind continues and very much hope you get the new home you need soon. TildaTxxxxx

  • Hi Susan, Great to hear from you, you are still abler to be upbeat. Happy news about your daughter, good for her!

    Just remember to pace yourself and your activities when you get ready to move. Take a break BEFORE it hurts! Enjoy Summer! It will be here eventually!! Lxxx

  • Susan, getting a diagnosis is a great thing,because now you know why your feeling like you have done. I got told last august and it felt like a weight had been lifted off my shoulders. When you know whats wrong you can begin to work with and round it.

    It seems that you have had a very hard time,not only have you have your disease to cope with,but your hubby has ms and your daughter has her health issues. Just remember, that god only gives us what he knows we can cope with,(well thats what i believe anyway,and i not that religious either)

    You and your family take care and i hope that you all soon start to have a bit better life ahead.

    love sylvi.xx

  • Hi Susanh, it's lovely to see that even with all you have on your plate you find time to appreciate the good things and shed a few happy tears :-) Glad to see that your life has taken a turn for the better. Here's hoping your pain eases too and you get that move soon. All the best

    Paula x

  • Shedding happy tears is good! It's great that you can be so positive . There probably will be other 'dark days', we all get those I think and you have a lot to cope with. You, your husband and daughter can all encourage each other.

    Good luck to you

    Tx

  • Thank you so much all of you I am always up beat remember all of you life is mind over matter if you don't mind it don't matter

    love to you all take care

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