it’s a long while since I was here, and glad to see familiar names still ploughing on.
I had years of remission but last two have not been so good and now on the floor. I know it’s rude to just suddenly reappear and rant, but hope you understand.
Have been through several unsuccessful changes of drugs and lots of steroids and have just finished 12 weeks of Amgevita. Which has not helped at all.
Looking through my notes in preparation for appointment on Tuesday I realise that I was prescribed this in 2022 when my Enbrel first failed! And it didn’t work then so why did my rheumy re-prescribe it! I imagine it was an oversight but I am furious as have just wasted 12 weeks in pain. Had a blood test yesterday and bloods are the worse they’ve been in 14 years.
I don’t know why I didn’t pick up that had been given two biosimilars of same drug - but I shouldn’t have to check surely. That’s the doctors’ job.
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I am finding it brilliant to be fair. Unlike the NHS where I think you have to try 5 DMARDs before they will consider a biologic my consultant here just put me on imraldi without hesitation when my last DMARD failed.
Having a total knee replacement on 13 February for OA and only had to wait 3 months for the appointment.
Nothing but praise for the French healthcare system.
That really sucks and I can see why you’re so angry, I would be. I hope they help you next week at your appointment. Make sure you tell them that you’ve been on it before.
Could it possibly be it was so long ago the Dr who prescribed it was not there and they didn't look far enough back to know remember you didn't obviously remember either until a detailed search?
Same doc, and has been same doc for about 10 years now. She is a sole practitioner (different system here). But yes as well as being g angry with her I am kicking myself that I didn’t check.
I was only thinking yesterday that we hadn't heard your wise words for a very long time. So sorry to hear you've been suffering & trust your doctor will find the answer this time.I always value your comments when posted - always so balanced and wise
oh sweetheart. What a fundamental error on their part. Rant away. It also served as a reminder to the rest of us; as if we didn’t know; that we have to be ‘on it’ and guide/advise the professionals. So thanks for that. Mine is ‘you can give me a steroid injection if you like but I have stopped responding to them’ usually met with disbelief and an insistence we try.
That’s interesting. A steroid jab has always been my go-to rescue remedy but the one I had to get me through new year’s eve did diddly squat. I thought perhaps as inflammation was so high it couldn’t deal with it, but maybe I’ve stopped responding to those too. 🙁
I don’t even respond to joint injections steroids, let alone subcut. I stopped responding quite early in my RA journey. Probably after 3/4 subcuts. They still don’t believe me though I managed to persuade an ortho this week who wanted to give me a shoulder injection we would be wasting everyone’s time and money! I’ve got first Rituximab on Thursday. Yes I’ve told them I don’t respond to steroids. Goes in one ear and out the other.
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new here.....Hello
Here I am again ! 
It's been a while
Here we go again...mtx
Hello again everyone!
