Thought I would update you all on progress so far. Had laser treatment on both eyes two weeks ago to get rid of the cloudiness. Great success - can see so clearly that I am spring cleaning the house! Went in for my operation on my foot last Friday. Cancelled one hour later as no one had told me to stop taking the enbrel and MTX 2 weeks beforehand! As the foot is classed as a dirty area for infection, it was explained that any infection getting in because of the virtually non existent immune system, would be very difficult to control and I could lose half my foot! Didn't want that to happen obviously. So as we go on holiday in September and there isn't sufficient time to get it in before then as it takes 4 - 6 weeks and 8 weeks before I am allowed to drive, it has been put back until after 9th October. I have to go to the surgeon's clinic again and he will then get me booked in. Hope it will be quick as don't really want to be hobbling around over Xmas. By the time I have it done, it will be a year since my GP referred me. Mainly because I didn't get the original referral papers to book the initial appt and had to ask for them after a couple of months of waiting, couldn't go in May or June as far too busy those two months and chose July and August as relatively quiet and not much on. I had expected beginning of July not the end as well.
Rheumy recommended me for Rixumitab but when I read the blurb about it, have decided not to pursue it for the time being - don't want to end up with brain problems although he explained it is so rare. Will see how I feel about it after I have had the foot done. Have let my Rheumy and GP know about the fiasco at the hospital. I know they were being cautious but you would think someone would have let me know to stop taking the drugs - it was all over my hospital notes.
Had a lovely week in Portugal at the end of June. Very hot - temperatures in the low 30s which did wonders for the arthritis. Didn't have a twinge at all. Went to Lisbon one day and the temperature was 37. We found a cafe for lunch and managed to find the only one in Lisbon which didn't have air conditioning. Didn't want anything to eat only drinks but the manager was so concerned we were not eating, he brought over rolls and cheese to share. Wasn't that kind? Had a wander around Lisbon - the one place I could happily live - and spent time going backwards and forwards on tram 28 our favourite as well as visiting the oldest brewery in Lisbon (that was the boys choice). It was air conditioned and lovely and cool after the heat outside and we had a good late lunch there. We stayed up on the coast at Cascais with the hotel overlooking the sea so we got sea breezes as well and only had to use the air conditioning in the room once. Pool and cafe bar on the 5th floor with stunning views. Lots of lovely restaurants to eat in and we found the one we had been to several times before on previous trips. Cost of train into Lisbon E9.60 return for two of us. British Rail can't compete. Spotlessly clean carriages and on time and trains every 20 minutes. Journey time 45 minutes. Why can't we do that here instead of being herded in like cattle into filthy carriages, with late trains etc.
Hope everyone is enjoying the sunshine. Love LavendarLady