I have joint damage in both feet due to Stills disease which manifests as RD diagnosed aged 17, now 62 with increasing pain in all joints.
Foot pain affected mobility and I sought help via podiatry. After a year the steroid injection was offered. The procedure was quick and almost painless, I elevated the foot as instructed for 48 hours afterwards and there were no problems.
Time will tell if there will be any beneficial effects but none noted after three days,I believe it may take a while or simply not work at all. We shall see. The foot surgeon asked if would consider surgery; as I can’t use crutches due to other joint pain I don’t think this is an option for me.
Anyway it’s done and I’ve polished my stilettos in case a miracle occurs but in the meantime it’s still low wedge ankle boots with orthotics and a slow careful tread for me.
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Stills
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I had a steroid injection into my wrist last November and found that it took quite a while to kick in but it's remained painless so far - hope that yours is equally successful 🍀
I've had a lot of steroids in left foot and did have surgery and it was best thing ever. My foot was straightened, toes all straightened and shaved. wired and plate in. That was over 6 years ago and my foot is still straight and painless. I can wear heels and do and no orthotics. Which made my foot worse all those years ago. I thought though the injections work in a few days so I hope it does for you. My right foot is normal and never had any issues. Fingers crossed for you. xx
Great to hear so I live in hope thanks for sharing, I’ll keep my stilettos at the ready 😀
ps, what was your recovery time and did you have a boot or crutches or something else? I can’t weight bare on my wrists, elbows or shoulders and limp on the other side to the treated foot due to RA I’m hip and knee so I think my options are limited apart from total bed rest 😉
Hi I’m wishing that to work for you. All of these things do seem to take time to kick in so hope it soon works for you. It’s really good you’ve experienced no problems since having the injection.
Love the comment about the stilettos 👠 made me smile 😊
I feel for you only got diagnosed with stills 10 yrs ago think had it as a child but mum says back then didnt know and the docs jus made her feel like she was over protective mumMy rheumy who diagnosed me was the only who seem to know about it and at 1st my bloods were off the scale but after he injected my wrists knee an shoulders an was in hospital a mth he understood an said he didnt jus go by my bloods he listened to me as a patient
Since diagnosed had both shoulder ops right hip bursitis injections now left hip saying calific tendonitis really struggling walk with it and saying knee as got lots worse osteoathritis on bout injecting it
Fractured both my wrists and kept saying nothing do with stills they put casts on so tight trapped my nerves my fingers were blue an hands so swollen 13 wks on hands are still so painful numb an can hardly use them every finger apart from lil finger the nurse up hospital even said what have they done to you she said i was the 6th 1 shed seen that wk an she said they trapped all your nerves she said no matter what they have done nerve damage to your hands an saying carpul tunnel i kept telling them was worried cos it was my wrists an ankles stills first affected an they didnt want know now suddenly saying its my stills an arthur an ive had it yrs an now saying keinbocks disease in left hand which is as rare as stills but feel like they say my stills in remission when it suits them then nxt minute well its all your stills
Just wish i could see my old rheumy or someone who actually knows about it
When stills affected my wrists at beginning it was nothing like this my wrists swelled and went over and were painfull and had no strength in them couldnt even cut up food oor hold shower head but not like this my fingers an hands are on fire an struggle to hold anything but feel completly different than when it was my stills
I know i ve broke both my wrists and In not saying with stills it wont cause problems but really do think they have caused nerve damage
Can i ask you since having stills have you ever broke wrists or had carpul tunnel problems i know we all different
Does your rheumy only go on your blood results or do they listen too
Its so hard cos the only thing serms to help is my prednisolone an managed get down to 10 mg an on 20mg methertrexate but really dont feel that does much an old rheumy took me off it for mths cos thought it didnt an an i felt no different off it just not as tired an crap after taking it
If you have any tips or anything you can share with your stills would be fab
Take care sorry long post hope u get wear your stilletos an do a lil jig cant remember last toime wore mine have kept few pairs an now an again try them on an dream of dancing like i was on top of pops thought i was in legs n co 🤣🤣xx
Hello, my diagnosis is adult onset Stills Disease made when I was 17 in 1979. At that time the meds ( that I can remember) were steroids, Indocid, aspirin, iron, distalgesics which I took for about 4 years. I became ill suddenly with sore throat fever and rash and within a week was confined to bed with extreme joint pain and immobility unable to lift a glass of water to take my own meds. My Mum cared for me for about 4 months until they worked out what it was and prescribed meds. I wore medical wrist and knee splints for two years.
I’ve never had another attack but have joint pain , damage and immobility and typical sore throat and afternoon fevers most days. I have other AI conditions like Lichen Sclerosus and Depuytrens Contracture and strange skin manifestations . I dominates my life as everything is planned around my ability and there is a need to pace and rest.
I have never broken a bone but a severe muscle injury to my lower leg that was untreated due to the pandemic has allowed Enthetitis to develop in the ankle area and I now limp. Limping has caused bursitis in my other hip and aggravated the damage in the big foot joint hence the recent steroid injection.
These days I use elastic bandage to support wrists and knees or a sorts brace recommended by physio. Since menopause ten years ago joint pain seems worse. In Nov 22 I had combined flu and Covid booster. Possibly not connected but I’ve been unwell since then with all sorts of new symptoms that have been inconclusive. Never met a GP who has heard of Stills and not seen Rheumy since 1984.
Best tips: heat, rest and support joints. Avoid tannin and acidic foods, try GF diet. Acknowledge the disease and live with it as it’s not going away.
Search this site as there at least two members with Stills. Take care
interested to know about your journey with AOSD? I was diagnosed in 1979 aged 17 and now 62. It was monophasic but I have significant small joint damage, elbows, hips, knees, wrists and feet. Other AI conditions have appeared over the years as expected. Hope you don’t mind this PM but there’s so few of us with Stills it’s a great opportunity to learn and share.
Thanks for your reply bet it was hard for you an your MumI started with fever n the ode wierd rash my gp thought lupus which rheumy said was good to diagnose something similar
I was admitted to luckily a hospital which speshialised in autoimune ra and joints was in a mth they were amazing but sadly there but no wards now
It affected my heart n liver an also thought lymphoma but luckily it was the stills
Interestingly enough I was investigated for lymphoma least year after a blood test abnormality, none was found but my Dad died if NHL so I guess they were being cautious 🙃 I meant to say in my earlier reply that I find swimming an exercise I can do without pain as there’s no impact on the joints but it has to be a warm pool. Take care
As an aside I can’t use normal crutches but I’ve had major surgery on both feet, 3 months non-weight bearing and another 9 months+ gradual rehabilitation. I managed by using a knee scooter downstairs and a walking frame (with gutter arm rests) upstairs. I went up and down the stairs on my bottom. Once I got to gradually increasing weight bearing and learning to walk I bought a pair of Smart Curuches.
Find out how long recovery would be and then look at alternatives to normal crutches there may be a way round it.
Thank you for your reply and I appreciate that recommendation, I will research smart crutches in the internet (carefully 😁). Are you fully recovered and mobile now?
My feet aren’t perfect (I knew they wouldn’t be!) but they are very much improved and I’m very glad I had them both done. It was a long haul I had the surgeries two years apart with a 12 month+ recovery after each one (and the Covid pandemic in between too!) but definitely worth it.
I could not have done the non-weight bearing weeks without a knee scooter. I got this one strideon.co.uk/product/Orth... so that I could take it outside too.
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