my mum has been on Inrutinib for a little over 3 years. She was rushed to hospital on Friday … she had no neutrophils and it seems it isn’t an infection.
could be a side effect of the ibrutinib. ?
She has had intravenous antibiotics.. they aren’t coming back up?
Has anyone experienced this. I’m scared as they have said she needs to consult her team urgently. Do they come back up eventually.
Ibrutinib has been stopped. Everything else is fine. Not anemic… any advice would be so grateful.
I'm sorry but to my knowledge ibrutinib isn't used for Rheumatoid diseases so couldn’t say if this is a side effect or not. I'd do as suggested & your Mum contacts her team urgently as they will respond as necessary.
Being neutropenic will have an affect on her immunity so I’m sure all will be done to help. They've already done what I would have expected & stopped her med, but what else I wouldn’t like to assume.
I hope your Mum responds soon & your concerns are eased.
Hope your mum gets better soon. Not heard of her meds 🌺
Thanks so much for the reply. I was meant to post this in CLL, but in haste got it all wrong. Really appreciate your reply thankyou
No problem. I'm pleased to hear that your Mum is showing improvement & hope it continues.
This is a possible side effect of this treatment and her dose will need to be stopped and possibly restarted at a lower dose after recovery of her neutrophil production. It sounds as if they are on the ball with investigating her but it is obviously very worrying for you. I do hope that she improves rapidly and you can have a talk with her and her team about her medications and what will happen in the future.
Did you mean to post this on the Rheumatoid Arthritis website?
Hi there, No it was meant for CLL but I was in a panic and got everything wrong. Mum is now improving slowly, thank you
Grade 3 and 4 neutropenia, thrombocytopenia, and anemia occurred during clinical studies in patients who received single-agent ibrutinib for B-cell malignancies. Hopefully they will rise when treatment stops
well seems i passed me blood tests but hell somthings not right
A little frustratrated with the lack of support in getting MTX injections, update and a general moan - off topic😤
Anyone experienced this ? Help / Advice .... aggghh
A letter from home after a long weekend in hospital part1
12 Year old daughter +RF- IgG 92.9 IgM 20 IgA 24.8 but CCP Negative - but many symptoms of RA - DR. thinks we are crazy.
