I’ve written on this forum a couple of times and in times of need I’m writing to see if anyone has been in the same situation...
My wife went in to Hospital with a very painful shoulder so much so she could not move it and was in severe pain .
Wife was on embrel.
A&E administered antibiotic then orthaepeadic completed aspiration . Unfortunately they weren’t able to know what bacteria caused infection because the fluid aspirated was diluted somewhat.
We were told it was septic arthritis and after iv antibiotics , she was given a course of six week antibiotics; rimfampicin and fluoxcillin and told that she could NOT take her anti tnf / embrel because they need to ensure the infection was clear.
2 good weeks afterwards followed by stress of getting married and then a massive flare up.
2 weeks ago ended up in a&e again as pain was severe and temperature up and down. Since then she has been in hospital with limited mobility and pain which goes up and down.
Thankfully we are in the hospital that her specialist RA team are based.
Currently she’s taking her predisolone , diclofenic and OxyContin for pain relief. She’s had MRI, ULtra sound to rule out anything untoward in her back and also heart scan. All come back okay,
Pain still there 2 weeks on, about 7/10 on the pain scale: she’s getting better nights sleep and when she does get stiff and painful her temperature goes up to 37.7... when she gets hot and stressed and panicked.
She knows her body and knows that the embrel will sort everything out but her rheumatologist is concerned about her going back on to an anti tnf so soon....however he is outweighing risks with benefits and current situation..... Monday is the day he discusses with her. If she was to go back on the anti tnf they’ve said that she would be on an antibiotic (her six week up they’re continuing on a new one) and monitor closely.
Not quite sure what I’m asking but I’m trying my best to give her positive thoughts etc and if anyone could get back to me privately or on here with stories of a similar ilk or words of advice / wisdom it would be very much appreciated.
For now we continue to keep calm and comfortable and I’m enjoying the overnights in her hospital room sleeping on the camp bed ... thanks goodness for Halfords.