Hi guys my partner Jim, is back in hospital and is worse than before. He has three options, do nothing and have more pain, more blood be in pain. The other option is have a CT scan with dye to see where the bleed is and if it goes wrong no pain and death, he will bleed to death. Options 3 CT scan with dye find blood vessel fix leak. It's called Embolinzation but die a horrible death but he would have to move to Hull and go through hoops. His kidney function is 23 up from 21 but he needs it to be 30 before option 3 is used. He called all the family round to discuss what next. He chose CT scan with dye and pain free death. I am having wicked headaches cannot stop crying, feeling so stressed. I have taken today of work as am so upset. But I can't just not go in. I will go into work tomorrow. I am not eating as just feel sick and still going to the hospital as I am today. We still don't know when the procedure will be done but Jim wants it done before the next excruciating pain with bleeding everywhere.
My steroids jabs have worn off so lots of pain back in my shoulders on top of everything else. Cannot stop crying and the stress is untrue!!
Once again thank you for listening. Take care everyone.
Written by
Carolsos
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Hi Carol, Been thinking about you and Jim lot’s especially as not hearing from you in a while and been wondering how Jim has been. It’s just so awful watching someone you love going through this and there’s nothing you can do for them except just be there for them. My father in law is going through exactly the same. But you must take care of yourself, can you not get some compassionate leave from work or phone your GP to sign you off. Also maybe telephone you rheumatologist and see if they can give you another steroid injection. X
I'm so sorry to hear this Carol and can imagine how bad it is to see him like that, it must be absolutely dreadful. Thinking of you both and hope you find the strength to cope with this. I agree with Julie about seeking time off from work and hope you can get it as you certainly need it. xx
Carol just sending warm hugs but please try to east a little bite of ANYTHING you can to help your body too. I call bananas my fast food (peel and go). Work- is there anyway you can take some sick leave/compassionate time just ask and see what they can do . If you dont ask you dont get and maybe they dont want to approach you......x
Sending lots of good wishes and gentle hugs. Horrible time for you all and difficult to think of something positive to say but we all here for you. As others have said, try to eat something if possible - doesn't really matter what, maybe something like Complan? When I was little and couldn't eat, my Mum used to whisk an egg into cold milk and then sweeten it with sugar - probably sounds awful but tasted just like a milkshake to me and is one way of getting something into you.
Oh Carol, this is just such a nightmare for you all, it’s just awful. All I can do is say I’m thinking of you and sending you my kindest wishes and a big virtual hug. Hopefully you can find something you can eat - even if it’s something like cornflakes and milk or a bar of chocolate - because you need to keep your strength up.
You have both been on my mind. It's an awful situation you're going through and you need to take care of yourself too. I'm not going to nag, just offering my very best wishes and huge virtual hugs
Big warm hugs to you, be kind to yourself and eat something. We are all thinking of you and hope you can find some strength to cope with your struggle and that Jim may be pain free.
I too have been thinking of you. Perhaps you could cope with some soup if your still not able to eat? I’ve found I can get some of that down me when I’ve been in an anxious state. Sending you all my very best wishes.
What a dreadful situation you are coping with. Like others have said maybe the first place to look is your gp to be signed off work so that stops being a worry. Second thing to consider is Rhuematology. If you can’t face talking to them perhaps email them laying out your situation and that you need to be physically and mentally able to cope with the demands of supporting someone who is very ill. There may be voluntary organisations in your area who might be able to offer support and remember the Samaritans are always there to just listen if you need to talk.
My heart goes out to you Carol, I wish you all the best. Hopefully the managers at work will be understanding. I admire your will and strength to keep going.
So sorry to hear of your situation. I don’t have any words except to say I’m sending you all the luck I can and to let you know we are all thinking of you and Jim.
I'm sorry to hear how much strain you're under with the worry about your husband. I'm sending my best wishes to you both and hope God blesses you both with better health xxx
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