Update : Hi guys my partner Jim, is back in hospital... - NRAS

NRAS

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Update

Carolsos profile image
35 Replies

Hi guys my partner Jim, is back in hospital and is worse than before. He has three options, do nothing and have more pain, more blood be in pain. The other option is have a CT scan with dye to see where the bleed is and if it goes wrong no pain and death, he will bleed to death. Options 3 CT scan with dye find blood vessel fix leak. It's called Embolinzation but die a horrible death but he would have to move to Hull and go through hoops. His kidney function is 23 up from 21 but he needs it to be 30 before option 3 is used. He called all the family round to discuss what next. He chose CT scan with dye and pain free death. I am having wicked headaches cannot stop crying, feeling so stressed. I have taken today of work as am so upset. But I can't just not go in. I will go into work tomorrow. I am not eating as just feel sick and still going to the hospital as I am today. We still don't know when the procedure will be done but Jim wants it done before the next excruciating pain with bleeding everywhere.

My steroids jabs have worn off so lots of pain back in my shoulders on top of everything else. Cannot stop crying and the stress is untrue!!

Once again thank you for listening. Take care everyone.

35 Replies
julie1908 profile image
julie1908

Hi Carol, Been thinking about you and Jim lot’s especially as not hearing from you in a while and been wondering how Jim has been. It’s just so awful watching someone you love going through this and there’s nothing you can do for them except just be there for them. My father in law is going through exactly the same. But you must take care of yourself, can you not get some compassionate leave from work or phone your GP to sign you off. Also maybe telephone you rheumatologist and see if they can give you another steroid injection. X

Carolsos profile image
Carolsos in reply to julie1908

Thank you for your reply.

springcross profile image
springcross

I'm so sorry to hear this Carol and can imagine how bad it is to see him like that, it must be absolutely dreadful. Thinking of you both and hope you find the strength to cope with this. I agree with Julie about seeking time off from work and hope you can get it as you certainly need it. xx

Oshgosh profile image
Oshgosh

even though life is hard and you’re stressed you need to eat even if it’s only a little at a time.

You need to be strong to cope with what’s happening.

Even if only a yogurt or cereal.

It’s good that he could make his own decisions.

I was wondering how things we’re going for you,but have been able n hospital for a week.

Giveypiurself a hug from me x

Deeb1764 profile image
Deeb1764

Carol just sending warm hugs but please try to east a little bite of ANYTHING you can to help your body too. I call bananas my fast food (peel and go). Work- is there anyway you can take some sick leave/compassionate time just ask and see what they can do . If you dont ask you dont get and maybe they dont want to approach you......x

Boxerlady profile image
Boxerlady

Sending lots of good wishes and gentle hugs. Horrible time for you all and difficult to think of something positive to say but we all here for you. As others have said, try to eat something if possible - doesn't really matter what, maybe something like Complan? When I was little and couldn't eat, my Mum used to whisk an egg into cold milk and then sweeten it with sugar - probably sounds awful but tasted just like a milkshake to me and is one way of getting something into you.

Carolsos profile image
Carolsos

Thank you all for your kind replies. He has just had a CT scan with dye and now we wait to see if anything happens. He was very scared as I am.

springcross profile image
springcross in reply to Carolsos

🙏xx

Haz58 profile image
Haz58 in reply to Carolsos

Saying prayers for you both 🙏🙏🙏

Pasjc profile image
Pasjc in reply to Carolsos

Praying for both of you x

Fruitandnutcase profile image
Fruitandnutcase

Oh Carol, this is just such a nightmare for you all, it’s just awful. All I can do is say I’m thinking of you and sending you my kindest wishes and a big virtual hug. Hopefully you can find something you can eat - even if it’s something like cornflakes and milk or a bar of chocolate - because you need to keep your strength up.

Honeybee61 profile image
Honeybee61

So sorry Carol. Like everyone else, I'm thinking of you. 💗

Mmrr profile image
Mmrr

Thinking of you

Gladders profile image
Gladders

Hope you and Jim have better news today, thinking of you.

Definitely think you need time of work, speak to your GP.We'll all be sending positive thoughts for the surgeons.

Sending love

Gnarli profile image
Gnarli

You have both been on my mind. It's an awful situation you're going through and you need to take care of yourself too. I'm not going to nag, just offering my very best wishes and huge virtual hugs

ageddancer profile image
ageddancer

Big warm hugs to you, be kind to yourself and eat something. We are all thinking of you and hope you can find some strength to cope with your struggle and that Jim may be pain free.

barbieg profile image
barbieg

I too have been thinking of you. Perhaps you could cope with some soup if your still not able to eat? I’ve found I can get some of that down me when I’ve been in an anxious state. Sending you all my very best wishes.

grumpygirl profile image
grumpygirl

What a dreadful situation you are coping with. Like others have said maybe the first place to look is your gp to be signed off work so that stops being a worry. Second thing to consider is Rhuematology. If you can’t face talking to them perhaps email them laying out your situation and that you need to be physically and mentally able to cope with the demands of supporting someone who is very ill. There may be voluntary organisations in your area who might be able to offer support and remember the Samaritans are always there to just listen if you need to talk.

stbernhard profile image
stbernhard

My heart goes out to you Carol, I wish you all the best. Hopefully the managers at work will be understanding. I admire your will and strength to keep going.

greynot profile image
greynot

Sending love ❤

Pulfs profile image
Pulfs

❤️

Mozart150 profile image
Mozart150

Thinking of you & sending love 💕💕💕

CripLady profile image
CripLady

I’m so sorry Carol that you are having to deal with all this. Best wishes 💐.

Leics profile image
Leics

So sorry to hear of your situation. I don’t have any words except to say I’m sending you all the luck I can and to let you know we are all thinking of you and Jim.

FloozieDuck profile image
FloozieDuck

So stressful but as others have said look after yourself,Jim will need all the support and you have got to be in a fit state.My thoughts are with you.

Monkeysmum profile image
Monkeysmum

Sending a big hug to you and Jim, Carol. Thinking of you both.

Plumcrumble profile image
Plumcrumble

Dear Carol I'm so very sorry sending love, thinking of you both 🙏❤️

Green230461 profile image
Green230461

Liking your post seems the wrong thing to do but just so you know we are listening. Only wish I could help. Take care of yourself 🌹

Lyndylou34 profile image
Lyndylou34

Wishing you both all the luck in the world for this procedure. 🤞

STILL-I-RISE26 profile image
STILL-I-RISE26

God Bless your Partner Jim and your self.

bunnycaramel profile image
bunnycaramel

im sorry to hear about your husband. Virtual hugs from me

Nana246 profile image
Nana246

sending best wishes xx

Garnacha profile image
Garnacha

I'm so very sorry you're going through this, sending lots of love & thinking of you all x

Createsomething profile image
Createsomething

I'm sorry to hear how much strain you're under with the worry about your husband. I'm sending my best wishes to you both and hope God blesses you both with better health xxx

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