Hi guys my partner Jim, is back in hospital and is worse than before. He has three options, do nothing and have more pain, more blood be in pain. The other option is have a CT scan with dye to see where the bleed is and if it goes wrong no pain and death, he will bleed to death. Options 3 CT scan with dye find blood vessel fix leak. It's called Embolinzation but die a horrible death but he would have to move to Hull and go through hoops. His kidney function is 23 up from 21 but he needs it to be 30 before option 3 is used. He called all the family round to discuss what next. He chose CT scan with dye and pain free death. I am having wicked headaches cannot stop crying, feeling so stressed. I have taken today of work as am so upset. But I can't just not go in. I will go into work tomorrow. I am not eating as just feel sick and still going to the hospital as I am today. We still don't know when the procedure will be done but Jim wants it done before the next excruciating pain with bleeding everywhere.
My steroids jabs have worn off so lots of pain back in my shoulders on top of everything else. Cannot stop crying and the stress is untrue!!
Once again thank you for listening. Take care everyone.
Hi Carol, Been thinking about you and Jim lot’s especially as not hearing from you in a while and been wondering how Jim has been. It’s just so awful watching someone you love going through this and there’s nothing you can do for them except just be there for them. My father in law is going through exactly the same. But you must take care of yourself, can you not get some compassionate leave from work or phone your GP to sign you off. Also maybe telephone you rheumatologist and see if they can give you another steroid injection. X
Thank you for your reply.