Amgevita injuction: Hi my 11 years old daughter going... - NRAS

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Amgevita injuction

Montaha profile image
17 Replies

Hi my 11 years old daughter going to get first amgevita injuction .those who has experience with it please tell me something about it does it help???she used methotrxate for around 2 months but it doesnt help thats why her Dr. Change to other one..thanks

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Montaha profile image
Montaha
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17 Replies
sylvi profile image
sylvi

Sorry i can't help you as to be honest i have never heard of it. xxxx

Montaha profile image
Montaha in reply to sylvi

Thanks Sylvi

helixhelix profile image
helixhelix

It is a good drug, and many people find it works practically like magic.

Unlike the traditional drug she was given before, this is a modern type of drug called a biologic which means it is made in a laboratory from cells. It has to be injected. Amgevita is one of the biosimilars to Humira, which a lot of people on here use. I use a slightly different one.

You should be told about it, and/or given a leaflet which you should read. The thing to be aware of it that it can increase the risk of your daughter catching serious infections. No need to panic, but just be aware of that. For example, clean small cuts and scratches and go to the doctor if they look as if they are getting infected.

Montaha profile image
Montaha in reply to helixhelix

Thanks very much for all the information you gave to me .i hope it is better than the other one .please give her good luck.

Gnarli profile image
Gnarli

I don't know but I wish your daughter all the luck in the world

Montaha profile image
Montaha in reply to Gnarli

Thanks dear

oldtimer profile image
oldtimer

it's other (generic) name is adalimumab. If you have a look on the NRAS website you should be able to find some information there. try: nras.org.uk/biosimilars

If you want some previous posts on how people have got on with it try putting adalimumab into the search box top right. But remember most people don't post if they are having success!

Montaha profile image
Montaha in reply to oldtimer

Thanks so much

Knit12 profile image
Knit12

I would ask about getting the gell to put on in advance of doing the injection so it numbs the area. Won’t be too nice for an 8 year old. Hope it works for her and wish I could be positive but I had bad reaction to Amgevita but everyone is different x

Montaha profile image
Montaha in reply to Knit12

Thanks💕

Olderguy profile image
Olderguy

Hi Montaha

My Granddaughter was twelve when she started this treatment. She’s just turned fourteen and has benefitted greatly from it. She has always had a fobia of needles, but has managed it well. It is one of a range of biological drugs that are very affective without the toxicity of their non bio alternatives. Other than shielding, she leads a near normal life, indistinguishable from all her friends. I hope your Daughter has the same outcome, good luck & big love 🙏😷

Montaha profile image
Montaha in reply to Olderguy

Thanks so much Olderguy ,am sorry that yiu granddaughtr has the same situation.is there any chance stopping medication?or they should keep taking it??thanks for wishing good luck,good luck for you granddaughter💕💕

Olderguy profile image
Olderguy in reply to Montaha

Hi Montaha

Thank you for your kind words. My granddaughter is diagnosed with Bechets Syndrome, a lifelong immune condition, so unlikely that she will ever discontinue meds. We just hope that she continues to respond as the alternative is not a consideration for us. So far it’s been a wonderful relief. I hope 🤞 your daughter has a similar response 👌😷

Montaha profile image
Montaha in reply to Olderguy

Dear Olderguy,my daughter diagnosed with polyarticular arthritis which is also chronic disases,she always asking me when i stop taking injuction ??!!i have no words just cry its difficult to tell her she will keep taking it for rest of her life.God Bless your granddaughter.kind regards💕💕

Olderguy profile image
Olderguy in reply to Montaha

Tell her to stay positive, she will overcome and Your strength will support her. She will be fine ! ❤️🥰😷

Ladybug6455 profile image
Ladybug6455

Hi,

I have been on Amgevita for about 18 months. Before I took it I struggled to walk. I now have a normal life. I experience aches and pains but nothing like the debilitating pain before. I hope it is the same for your daughter x

Brychni profile image
Brychni

❤ Montaha, I hope this new drug works for your daughter. My daughter is 11 too and has hypermobile joints which are sometimes painful. Breaks my heart. Good luck xx

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