Feeling very emotional

[Doughnut61]

Any one on here had diverticulitis ? I’m taking sulphasalazine for RA, neutrophils low because of that. Felt unwell saw GP CRP showing 99 sent to A&E had intravenous antibiotics, now home bed resting with a weeks course of strong antibiotics. Have to go back to A&E on Monday to check CRP . Decided to stop Alendronic acid today owing to all side affects. Feeling emotional it just seems one thing after another 😭😭

[Mmrr]

I don't have diverticulitis, I just wanted to say look after yourself and I hope your bloods have improved by Monday.

[nomoreheels]

I'm sorry to hear this. My closest friend's husband has it, under control now but was poorly in the beginning. He had surgery & now generally well, well enough to go & oversee production of their scooter in Thailand.

I hope you'll feel better & soon.

[B3ntl3y]

Ahh thats horrid Should think you do feel emotional Thats the trouble you take one drug and it upsets another area Of your body

Don’t know the answer have a good cry and a nice big cake or chocolate

As long as it doesn’t make you ill or aggravates the diverticulitis

Hope you get sorted soon

[Fruitandnutcase]

I was told a few years ago that a pain I had low down on my lower abdomen was diverticulitis but to be honest I thought it was my IBS playing up and the doctor I saw just said diverticulitis because it is common in people of my age - I was in my late sixties back then. I really wasn’t in the least convinced about it.

No wonder you feel emotional - you must feel awful with a CRP as high as that. I hope it has gone down when you go to get checked out next.

Last year I stopped AA after four months because I felt so ill - what I’d describe as ‘all over ill’, it started with me feeling really exhausted the day I took it - I used to go for a walk straight after I took the pill first thing on a Sunday morning, come home and have breakfast then stretch out on my husbands reclining chair and sleep until lunch, eat then go back to sleep. So that was a whole day down the drain.

The next day all of my bones hurt - especially the wrist I had broken. After that came a series of massive sinus infections, one side of my face felt like I’d been punched, then earache, my teeth started to hurt, my vision became blurred to the extent I gave up trying to watch tv or read because as well as being blurred my eyes felt as if they were burning,

I had constant swollen glands just under my chin and inside under my tongue and inside my mouth I had ulcers that hurt, in the time I took the alendronic acid I had four prescriptions for antibiotics for the sinus pain, two from the doctor and two from different dentists, I only saw one of the dentists in person because of covid but I eventually discovered where my old dentist had moved to and went back to see him. He checked me over, did X-rays and said my teeth were fine and my dental hygiene was very good. I also felt wonky and unstable when I was out walking - I clung on to my husband like a drowning man to a life belt. Once I stopped the AA I went back to normal.

I was offered infusions by my rheumatologist recently but I just couldn’t face feeling as bad as that again and the rheumy I saw said she couldn’t guarantee that I wouldn’t have the same symptoms with infusions I did so I’ve said no thanks - at least I was able to stop taking pills I didn’t fancy having a whole years worth of the drug at the one time. Saying that I know lots of people some who take the tablet and others who have had infusions and seem to be ok.

I know what I’ve done is probably (definitely?) not sensible but I feel a lot healthier now.

So relax, rest and take care of yourself and hopefully on Monday you’ll find that your antibiotics have done their job and reduced your CRP. Don’t feel bad about feeling emotional - I’d say you are entitled. Some years you just want to forget, for me it was 2020. 💐

[nomoreheels in reply to Fruitandnutcase]

You did suffer with alendronic acid didn't you. I swapped to risedronic acid hoping I’d tolerate that better with no joy. My GP suggested infusions to my Rheumy but she was concerned that, like you, I'd have the same symptoms, but worse. Not been on any bisphosphonate for 7 years but fracture risk actually reduced by increasing dairy.

[Lolabridge]

So sorry to hear you're suffering and hope your bloods will improve soon. Do make sure your Rheumy team know your CRP is so high at the moment.Take it easy this weekend.

[weathervane]

Hi Doughnut, I have diverticulitis. Ive had a number of severe episodes with alot of pain and sickness but no infection. The episodes knocked me sideways each time for a couple of days . I have been stable now for a number of months, i avoid raw onions, garlic and too much tomatoes. I can tolerate powdered garlic ok . For some reason fajitas , even just the chicken, really disagree with me as well .

I hope this helps, though it maybe different for everyone.

My wbc and neurophils are also low as im on rituximab infusions.

Best wishes xx

[hatshepsut]

Hi doughnut, so sorry that you have joined the diverticulitis club. I have had it since I was mid thirties, now 74, and have been hospitalised twice with it.It does knock you for six, so make sure that you get plenty of rest, and drink lots.

Now that you're on antibiotics it should settle.

I have learnt over the years to recognise the warning signs......pain , malaise, fatigue, slight nausea, but I know that everyone is different. It's good to note any food that might bring it on, I have read all the lists online, when a lot of roughage is recommended in your diet, but I have found that too much sets mine off!!! I think its an individual thing.

Good job your GP was on the ball, and you avoided hospital admission! Do hope you feel better soon, just take care of yourself, and rest. Don't feel guilty! Best wishes M xx

[Marionfromhappydays]

Take care and hope mondays visit goes well xx

[Summerrain14]

I’m so sorry to hear how unwell you are. Really hoping things start going in a better direction for you. My mum has diverticulitis as she is so unwell with it.

Really hope your CRP starts to come down xx

[Sheila_G]

So sorry you are feeling so awful at the moment. I hope your next blood tests are better. Have a good rest and be kind to yourself. x

[Fra22-57]

Yes I have diverticulitis and am always having bad episodes.Told it was only mild but feels like agony when flares up and feel absolutely grotty.I do take alendronic acid along with the calcichew D3 forte as bone scan decided I needed it but I am going to ask gp if it’s now ok to stop . Feel for you as it is so awful to feel like you do.hope you soon feel well

[Angels54]

An I as what side affects you are getting with Aldronic Acid , and are you taking it due to fractures or Osteoarthritis.?

[Doughnut61 in reply to Angels54]

Sorry taken so long to reply, I’ve been in hospital now diagnosed with diverticulitis, been on antibiotic drip as full of infection ☹️ I had no real issues with Alendronic acid but side affects scared the life out of me, going through enough already, so decided to stop them. After reading a few stories it scared me.

[Angels54]

It’s so hard when we have to deal with all these health problems, I think it’s goid to try probiotics, Actimal , yogurts as they do help , good luck 🤞

[auntiesally]

awwwwwwwwwww, hope you are feeling better now

[Gottaloveastaffy]

Awwww emotional and let it out xx I’m the worst for trying not to and then it comes out in a big blob !!! I hope you feel better soon x sometimes it’s just better to have a rant and rage and get it all gone xx 😘 never ending all this isn’t it !! Think you’re getting somewhere then bam down you go again x. Keep fighting xxx